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Public and Community Involvement and Engagement Getting Involved Why Do People Get Involved? We believe that everyone has something worthwhile to contribute and we are all working together to ensure that the voices of local people are at the heart of all we do. Here are some reasons our public members gave for getting involved: Choose some quotes to appear here… Who Can Get Involved? Anyone with knowledge and, or experience of Health or Social Care services in our Wessex region, which covers Hampshire, Isle of Wight, Dorset and South Wiltshire. Your experiences and views to help us shape our research to improve the Health and Social Care services offered. How Can You Get Involved? We have a number of opportunities for public members to be involved in the work of the ARC, these are: Public Contributor: Being a Public Contributor you will become part of our research family and can be involved in some of our locally based research projects. We will let you know when opportunities to be involved become available via email. There is no minimum or maximum commitment, you can pick and choose the involvement opportunities as they are offered, depending on your interests and availability. Signing up is a simple process which allows us to get to know you a little better. For more information or an informal discussion please click here to email the Team. (ADD email address) Alternatively, you can write to the Team at: ARC Wessex, Public Involvement, Southampton Science Park, Innovation Centre, 2 Venture Road, Chilworth, Southampton SO16 7NP Public Advisor: We have a team of public members who have taken on additional roles as Public Advisors. As well as being involved in the same way as the Public Contributors, Public Advisors work with our research theme teams and support the organisational work (governance) of ARC Wessex, helping to ensure the research we support is relevant to our local communities and meets our objectives (aims/ goals). ARC Public Involvement Forum The ARC Public Involvement Forum - or APIF for short, links researchers with public contributors for each other of our research time areas. The areas are: ageing & dementia, healthy communities, long-term, conditions, health systems and workforce, as well as our mental health and social care research hubs. Each public contributor or Public Research Champion is part of research theme meetings and is supported by a Staff Link who is normally a member of the research team for that theme. NHS Dorset Integrated Care System (ICS) Hampshire and Isle of Wight Integrated Care System (ICS) NHS Trusts Dorset County Hospital NHS Foundation Trust Dorset HealthCare University NHS Foundation Trust Hampshire Hospitals NHS Foundation Trust Isle of Wight NHS Trust Portsmouth Hospitals University NHS Trust University Hospitals Dorset NHS Foundation Trust Salisbury NHS Foundation Trust Solent NHS Trust Southern Health NHS Foundation Trust University Hospital Southampton NHS Foundation Trust Universities Bournemouth University University of Portsmouth University of Southampton University of Winchester Research partners Health Innovation Wessex (formerly Wessex Academic Health Sciences Network) What is PCIE? Support for researchers Resources PCIE guide Questions? It's natural to have questions so we have put together some of the answers to commonly asked questions about public involvement and engagement with research - take a look below and see if these answers help. NHS Dorset Integrated Care System (ICS) Hampshire and Isle of Wight Integrated Care System (ICS) NHS Trusts Dorset County Hospital NHS Foundation Trust Dorset HealthCare University NHS Foundation Trust Hampshire Hospitals NHS Foundation Trust Isle of Wight NHS Trust Portsmouth Hospitals University NHS Trust University Hospitals Dorset NHS Foundation Trust Salisbury NHS Foundation Trust Solent NHS Trust Southern Health NHS Foundation Trust University Hospital Southampton NHS Foundation Trust Universities Bournemouth University University of Portsmouth University of Southampton University of Winchester Research partners Health Innovation Wessex (formerly Wessex Academic Health Sciences Network)

Get Involved We value all the help and support we get from our public contributors. Your input is important to us and helps us to design better research, address the health and care issues that matter in our communities and provide valuable support to our research teams. You can get involved with as little or as much as you would like either as a member of the public, a patient or carer for someone, or maybe you are supported in social care (sometimes called being a service user) The NHS, Universities and Councils often use jargon and short-hand as a way of describing things. Having people with different experience can help break down barriers in language. Working with us you will have all the support and encouragement you need in what can sometimes feel like an unfamiliar environment. We also cover costs of your time in many cases so that you are able to take part. If you would like to know more please get in touch with us at PublicInvolvement@uhs.nhs.uk or call us on 023 8120 4989. Or you can fill out the form below to let us know what particular things you're interested in. Introduction Frequently asked questions NHS Dorset Integrated Care System (ICS) Hampshire and Isle of Wight Integrated Care System (ICS) NHS Trusts Dorset County Hospital NHS Foundation Trust Dorset HealthCare University NHS Foundation Trust Hampshire Hospitals NHS Foundation Trust Isle of Wight NHS Trust Portsmouth Hospitals University NHS Trust University Hospitals Dorset NHS Foundation Trust Salisbury NHS Foundation Trust Solent NHS Trust Southern Health NHS Foundation Trust University Hospital Southampton NHS Foundation Trust Universities Bournemouth University University of Portsmouth University of Southampton University of Winchester Research partners Health Innovation Wessex (formerly Wessex Academic Health Sciences Network) Frequently askd questions Our commitments and strategy Our new Public and Patient Involvement and Engagement team is growing and adapting to the needs of our community. As a result we are in the process of updating and redesigning our strat egy and summary documents listed below. Our commitments still stand as listed: We will use a variety of ways to seek the views and insights of patients and the public, and work to ensure that the diversity of people giving their views reflects the diversity of the local population. We will provide information that is clear, jargon free and accessible. We will ensure people are adequately supported in their involvement role. We will make sure there are no financial implications for people’s involvement. We will involve people in a way that is open, honest and meaningful, being clear about what decisions they can and cannot influence. We will act on the views we have sought, and feedback to those who gave them on what we did, working in partnership with patients and the public to improve the quality and relevance of our research. Public and Patient Involvement and Engage ment (PPI/E) strategy Download PPI/E Strategy 2021-2024 summary report Download PPI/E Strategy 2021 - 2024 full report PPI resources Public and Patient Involvement resources Learn more about Public and Patient Involvement Learn more about Public and Patient Invo... Play Video Play Video 00:51 Public and patient support in research Hazel and Phillip have just been taking part in the research design workshop looking at how people manage with a long term illness

< Back Brad Grecco Marketing Associate This is placeholder text. To change this content, double-click on the element and click Change Content. Want to view and manage all your collections? Click on the Content Manager button in the Add panel on the left. Here, you can make changes to your content, add new fields, create dynamic pages and more. Your collection is already set up for you with fields and content. Add your own content or import it from a CSV file. Add fields for any type of content you want to display, such as rich text, images, and videos. Be sure to click Sync after making changes in a collection, so visitors can see your newest content on your live site. info@mysite.com 123-456-7890

COMPLETED: Material Citizenship Framework Project Principal Investigator : Professor Jackie Bridges (Professor of Older People's Care, School of Health Sciences, University of Southampton) Co-investigator : Dr Kellyn Lee (Visiting Fellow, School of Health Sciences, University of Southampton) Researchers: Dr Jane Frankland, Leah Fullegar Collaborator: Zoe McCallum (Chief Operating Officer, Brendoncare) Started : 1 February 2020 Completed: 30 November 2022 Project partners: Brendoncare Foundation. Co-funded by University of Southampton ESRC Impact Acceleration Account, Alzheimer’s Society, The Brendoncare Foundation Concept Material Citizenship, a new approach to dementia care, uses objects used to carry out tasks (such as a mobile phone or curling tongs) as a mechanism for improving the care experience for care home staff and people living with dementia in care homes. It does so by: Encouraging care home staff to include personal possessions in care plans Support use of personal possessions to maintain routines and rituals Enable people living with dementia to carry out everyday tasks, supporting them to the live the life they want to live Impacts Material Citizenship training was delivered to four care homes, part of two care organisations in the UK. Adopting a Material Citizenship approach has had a positive effect on many of the people who live, work and visit these care homes. According to one care home manager, taking a Material Citizenship approach has transformed how they provide care. They have seen an improvement in the wellbeing of residents and increased confidence in staff who attended the training. Care home staff are now supporting people living with dementia to engage in meaningful activities such as delivering newspapers, baking bread and polishing their own rooms – with the polish they like. It has also had a more fundamental impact on the care practices of a care home. In one care home the manager gave an example of how it has changed the culture in the care home. Prior to introducing Material Citizenship catering staff worked certain times of the day and food was restricted to set meal times. This has changed and catering staff are now available to support residents in meal choices and meal times that suit them. It was also reported that prior to Material Citizenship, time restrictions of when people should leave the care home and return to the care home were in place. Residents no longer need to be back at certain times, they have more freedom to come and go as they wish, something noted by an external healthcare professional as being wonderful. Material Citizenship has enabled care home staff to grow in confidence. Prior to attending training care home staff were observed to be frequently deferential when interacting with visiting healthcare professionals. Now care home staff are more willing to engage and assert themselves to get the best possible outcome for residents. By applying a Material Citizenship approach it has been reported staff are less likely to rush to the assumption that medical intervention might be the best way forward to to reduce behaviours they find challenging. Instead, staff are using objects as a way of exploring why a person may be communicating in a negative way and have more confidence when working with people living with dementia. Publication: Material Citizenship: An ethnographic study exploring object–person relations in the context of people with dementia in care homes

COMPLETED POST DOCTORAL PROJECT: The career aspirations of nurses working in the research delivery workforce: a cross-sectional survey Chief Investigator: Dr Miriam Avery – University of Southampton and University Hospital Southampton NHS Foundation Trust Organisations Involved: University of Southampton, University Hospital Southampton NHS Foundation Trust. Background: We know that nurse-led research in health and social care is crucial to enable nurses to deliver high quality care based on the best available evidence. Nurse-led research is being generated within higher education institutions and a small number of NHS roles, but nurses remain an under-represented group in health services research. There is a clear capacity problem for nurse-led research. Within the NHS, the largest group of nurses working in research are in research delivery roles. This section of the nursing workforce has experience, skills, and competencies in delivering research within a health and social care environment from start to finish. All these skills are of prime importance when designing and leading a research study. However, as there is little published data on the career aspirations of this group of nurses, the extent to which they have the desire to progress an independent researcher career and build capacity for nurse- led research is unknown. The aim of the study is to undertake an online survey of nurses working in research delivery roles in local acute NHS Trusts to determine the career aspirations of this group of nurses. The study is at a very early stage, with the research proposal and protocol in the process of being developed. We expect the set-up and recruitment phase to be completed by the autumn of 2022. The planned online survey includes questions around the current activities of nurses in research delivery roles, as well as training, skills, competencies, and career aspirations. The findings from the survey will provide much needed data about the aspirations of this group of nurses, which will determine the next phase of this research project. If there is aspiration for independent research amongst a section of this workforce, then there is an urgent need to facilitate progression along this career path. Summary of Findings We found that…. • Respondents: 298 Nurses, midwives and AHP’s in the research delivery workforce completed the survey (43% response rate) about ‘research leader’ career aspirations. •Nearly a quarter ‘aspired’ to be a research leader; around a half ‘might aspire’. •Of those aspiring, most (70%) found it difficult or very difficult. Only around a third were confident of achieving ‘research leader’ within 5 years. • Publications: only 21% had been a named author on a peer-reviewed publication • Funding: Most (81%) had no idea or were uncertain as to where to apply for funding •The factors that most respondents identified would help them achieve this goal were: clearer career paths into research leader roles , more guidance and support in making career choices and more mentorship opportunities . • Conclusion: there appears to be a large number expressing some potential aspiration for leading research within the nurse/midwife/AHP research delivery workforce – is this untapped potential? What did we do with this knowledge? - The knowledge from this study has relevance to academics and the clinical research delivery workforce. - Local communication: Presentation of the findings at University Hospital Southampton Research & Development Quarterly Forum meeting. The audience was mainly Research Delivery staff and management. - International conference: Abstract and poster at the RCN International Research Conference in Manchester (6th-8th September 2023). - Direct NIHR presentation: The findings of the survey were presented to Professor Ruth Endacott (NIHR Director of Nursing & Midwifery). What is next? We are planning 2 publications and an update to NIHR.

< Back Brian Chung VP Product This is placeholder text. To change this content, double-click on the element and click Change Content. Want to view and manage all your collections? Click on the Content Manager button in the Add panel on the left. Here, you can make changes to your content, add new fields, create dynamic pages and more. Your collection is already set up for you with fields and content. Add your own content or import it from a CSV file. Add fields for any type of content you want to display, such as rich text, images, and videos. Be sure to click Sync after making changes in a collection, so visitors can see your newest content on your live site. info@mysite.com 123-456-7890

Outcomes and Impact Project Outputs This domain helps you consider the outcomes and impact of your project output(s) for patients, service users, health and social care professionals, third sector organisation professionals and health and social care systems. NHS Dorset Integrated Care System (ICS) Hampshire and Isle of Wight Integrated Care System (ICS) NHS Trusts Dorset County Hospital NHS Foundation Trust Dorset HealthCare University NHS Foundation Trust Hampshire Hospitals NHS Foundation Trust Isle of Wight NHS Trust Portsmouth Hospitals University NHS Trust University Hospitals Dorset NHS Foundation Trust Salisbury NHS Foundation Trust Solent NHS Trust Southern Health NHS Foundation Trust University Hospital Southampton NHS Foundation Trust Universities Bournemouth University University of Portsmouth University of Southampton University of Winchester Research partners Health Innovation Wessex (formerly Wessex Academic Health Sciences Network) What should I consider for my project? Adoption and Spread Project Outputs Buy-in and Engagement Fit with Health and Social Care Systems Alignment with Health and Social Care Priorities Outcomes and Impact Project Outputs Buy-in and Engagement Fit with Health and Social Care Systems Alignment with Health and Social Care Priorities Outcomes and Impact Adoption and Spread Checklist, webinar and resources Quick links: Case study Stroke awareness Action Learning Sets for health and social care professionals Project (SALs) team “ Upon reflection, thinking about the potential benefit or outcomes of our project to different stakeholder groups has been essential to increasing the impact of our project. We thought about what we wanted to achieve during the lifetime of the project in terms of improving awareness of stroke in clinical and community settings, but also longer-term and how this may improve patient and service user experiences of accessing stroke care. We knew that our stakeholder groups would be patients, social care users and health care professionals, social care professionals and third sector organisation professionals, as well as the wider health and social care system. At the beginning of the project, we considered how we would measure or evaluate the impact of the project outputs with these stakeholder groups. Closure of a local stroke awareness information support centre during the project, was devastating to the local community. It also meant that we wanted to adapt the aims of the project to accommodate the needs of those directly affected. Had we not been engaged with different stakeholder groups; this would not have happened. It made us realise the importance of engagement with stakeholders throughout to ensure that what we needed to measure or evaluate was closely aligned to their needs and priorities.” Take away tips Potential outcomes and impact of implementation should be considered at the outset of a project Engagement with stakeholders is essential to determining outcomes and impact for individuals, organisations and the wider health and social care system

< Back This is a Title 03 This is placeholder text. To change this content, double-click on the element and click Change Content. This is placeholder text. To change this content, double-click on the element and click Change Content. Want to view and manage all your collections? Click on the Content Manager button in the Add panel on the left. Here, you can make changes to your content, add new fields, create dynamic pages and more. You can create as many collections as you need. Your collection is already set up for you with fields and content. Add your own, or import content from a CSV file. Add fields for any type of content you want to display, such as rich text, images, videos and more. You can also collect and store information from your site visitors using input elements like custom forms and fields. Be sure to click Sync after making changes in a collection, so visitors can see your newest content on your live site. Preview your site to check that all your elements are displaying content from the right collection fields. Previous Next

< Back Kelly Parker HR Representative This is placeholder text. To change this content, double-click on the element and click Change Content. Want to view and manage all your collections? Click on the Content Manager button in the Add panel on the left. Here, you can make changes to your content, add new fields, create dynamic pages and more. Your collection is already set up for you with fields and content. Add your own content or import it from a CSV file. Add fields for any type of content you want to display, such as rich text, images, and videos. Be sure to click Sync after making changes in a collection, so visitors can see your newest content on your live site. info@mysite.com 123-456-7890

< Back Ashley Amerson Product Manager This is placeholder text. To change this content, double-click on the element and click Change Content. Want to view and manage all your collections? Click on the Content Manager button in the Add panel on the left. Here, you can make changes to your content, add new fields, create dynamic pages and more. Your collection is already set up for you with fields and content. Add your own content or import it from a CSV file. Add fields for any type of content you want to display, such as rich text, images, and videos. Be sure to click Sync after making changes in a collection, so visitors can see your newest content on your live site. info@mysite.com 123-456-7890

< Back This is a Title 02 This is placeholder text. To change this content, double-click on the element and click Change Content. This is placeholder text. To change this content, double-click on the element and click Change Content. Want to view and manage all your collections? Click on the Content Manager button in the Add panel on the left. Here, you can make changes to your content, add new fields, create dynamic pages and more. You can create as many collections as you need. Your collection is already set up for you with fields and content. Add your own, or import content from a CSV file. Add fields for any type of content you want to display, such as rich text, images, videos and more. You can also collect and store information from your site visitors using input elements like custom forms and fields. Be sure to click Sync after making changes in a collection, so visitors can see your newest content on your live site. Preview your site to check that all your elements are displaying content from the right collection fields. Previous Next

< Back This is a Title 01 This is placeholder text. To change this content, double-click on the element and click Change Content. This is placeholder text. To change this content, double-click on the element and click Change Content. Want to view and manage all your collections? Click on the Content Manager button in the Add panel on the left. Here, you can make changes to your content, add new fields, create dynamic pages and more. You can create as many collections as you need. Your collection is already set up for you with fields and content. Add your own, or import content from a CSV file. Add fields for any type of content you want to display, such as rich text, images, videos and more. You can also collect and store information from your site visitors using input elements like custom forms and fields. Be sure to click Sync after making changes in a collection, so visitors can see your newest content on your live site. Preview your site to check that all your elements are displaying content from the right collection fields. Previous Next