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Web-based Implementation Toolkit (WIT) Quick links: Project Outputs Buy-in and Engagement Fit with Health and Social Care Systems Alignment with Health and Social Care Priorities Outcomes and Impact Adoption and Spread Checklist, webinar and resources Quick links: Project Outputs This Web-based Implementation Toolkit (WIT) is designed to be easy to use and intended for a variety of users, projects and settings where implementation is planned or being considered. Implementation is the attempt to introduce a new intervention, innovation or policy developed through research and apply it to health and/or social care and the third sector. WIT provides you with an interactive Implementation Wheel, Checklist and bite-size Webinars (average 10 minutes) to support you through your implementation journey. Who is WIT for? WIT recognises the need to provide freely available, accessible and simple to use tools that focus on key considerations at the outset of a project. WIT was co-produced through interactive workshops with health and social care professionals, third sector organisation professionals, academics and members of the public. Anyone looking to understand more about or engage in implementation. Why use WIT? When to use WIT From the beginning – when first considering and designing a project Throughout all stages of your implementation journey and beyond To guide you through implementation considerations for your project There are six wheel domains to help you consider what is required for implementation. Click on a domain segment to find out more. Adoption and Spread Project Outputs Buy-in and Engagement Fit with Health and Social Care Systems Alignment with Health and Social Care Priorities Outcomes and Impact How to use WIT Use the interactive Implementation Wheel, Checklist and bitesize Webinars to support you on your implementation journey and beyond. The six Wheel domains can be used iteratively, and in no particular order. The Checklist is downloadable and consists of the same domains as the Wheel. You can use this to complete with your team and check progress of your implementation journey. The Webinars , approximately 10 minutes duration, provide sessions relating to the six Wheel and Checklist domains and also to an introduction to implementation and implementation theories and frameworks. Hover on keywords to see definitions Other words in bold represent key learning points The Resources section provides suggestions for other resources you may find helpful. implementation Implementation is the attempt to introduce a new intervention, innovation or policy developed through research and apply it to health and/or social care and the third sector. Feedback via our short survey If you fulfil the criteria on the attached poster , Researchers from the School of Health Sciences, University of Southampton/NIHR ARC Wessex would like you to test WIT by providing feedback via a short survey . Or alternatively scan the QR code. Thank you. Contact us If you have any questions about WIT, please contact: C.F.Brooks@soton.ac.uk Disclaimer The development of WIT has been supported by the NHS Insight Prioritisation Programme (NIPP). The views expressed are those of the authors and not necessarily those of the NHS. The funders had no role in study design, data collection and analysis, decision to publish, or preparation of this website. How to cite Brooks, C.F., Lund, S., Kryl, D., and Myall M. (2023) Web-based Implementation Toolkit (WIT). University of Southampton. Available at: www.arc-wx.nihr.ac.uk/web-implementation-toolkit Accessibility We are committed to providing a website that is accessible to as many people as possible. We are actively working to increase the accessibility and usability of the website.

Data Sets Machine learning methodologies are increasingly popular in health care research. This shift to integrated data science approaches necessitates professional development of the existing health care data analyst workforce. To enhance a smooth transition, educational resources need to be developed. Barriers to accessing real healthcare datasets, vital for health care data analyses methodologies training purposes, include financial, ethical and patient confidentiality concerns. Synthetic datasets mimicking real-world complexities offer a simpler solution. On this page, we present a synthetic dataset which mirrors routinely collected primary care data on heart attack and stroke among the adult population. The data incorporates much of the practical challenges encountered in routinely collected primary care systems such as missing data, informative censoring, interactions, variable irrelevance, and noise and can be used for training in methods which handle these difficulties. The intent is for the user to build models of heart/stroke risk using survival-based methodologies. By sharing this synthetic dataset openly, our goal is to contribute a transformative asset for professional training in health and social care data analysis. The dataset covers demographics, lifestyle variables, comorbidities, systolic blood pressure, hypertension treatment, family history of cardiovascular diseases, respiratory functioning, and experience of heart-attack and/or stroke. This initiative aims to bridge the gap in sophisticated healthcare datasets for training, fostering professional development of the health and social care research workforce. Development of this dataset was funded by ARC Wessex and the National Centre for Research Methods (NCRM). Synthetic Data set CSV cvd_synthetic_dataset_v0.2_metadata.xlsx

de23ed25-467a-496e-b29a-68a949839608 ADOPTED: FLOWS Planning for Frailty: Optimal Health and Social Care Workforce Organisation Using Demand-led Simulation Modelling Principal Investigator: Dr Bronagh Walsh, Associate Professor, School of Health Sciences, University of Southampton. Team: Professor Peter Griffiths , School of Health Sciences, University of Southampton: Dr Carole Fogg, School of Health Sciences, University of Southampton: Mr Mike Hepburn, Southampton Business School, University of Southampton: Dr Abigail Barkham, Southern Health NHS Foundation Trust: Honorary Professor Martin Vernon, Tameside and Glossop Integrated Care NHS Foundation Trust: Professor Lee-Ann Fenge, Department of Social Work and Social Sciences, Bournemouth University: Professor Jane Ball, School of Health Sciences, University of Southampton: Professor Sally Brailsford, Southampton Business School, University of Southampton: Ms Francesca Lambert, PPI lead, School of Health Sciences, University of Southampton. Start: 01/11/2022 End: 31/10/2025 Background: As the population ages, robust workforce planning to meet future demands for health and social care by older people is needed. A lack of evidence in this area has led to a mis-match between the health and social care demand from the ageing population and the current workforce capacity. The proposed study will use demand-led simulation modelling of the workforce required to address the specific challenge of providing health and social care for the growing numbers of older people living with frailty. Aims & Objectives: The aim of the study is to use simulation modelling to explore long-term trends in frailty-related health and social care use in the ageing population and its implications for future workforce size and competencies to support high quality care. The primary objective of this study is the creation of a simulation model that will inform service and workforce planning to meet health and social care needs associated with frailty. Methods: The study will use a System Dynamics design to develop and test the simulation model. Work packages comprise a scoping review, gathering of public and professional perspectives on service provision via a survey and stakeholder engagement activities, and analysis of linked health and social care data, all of which inform the simulation modelling work package and development of a workforce planning toolkit. Timelines for delivery: The scoping review will be completed in year 1. Routine health and social care data specification and extraction will occur in year 1, as will service mapping and classification and survey preparation. Survey data collection and analysis will occur in year 2. Simulation modelling will commence in year 2, with validation, sensitivity analyses and scenario modelling in year 3. Development of workforce guidelines and toolkit will occur in. year 3 Stakeholder engagement, including patient public involvement, will run throughout the study, reviewing study results and informing development of the other work packages. Anticipated impact & dissemination: This study will provide new, direct evidence about the impact of frailty on health and social care workforce requirements within the ageing population The improved understanding of workforce requirements offered by this study will inform workforce planning for frailty services across health and social care, ensuring future benefit for patients through provision of timely and appropriate care and a workforce planning toolkit to support local decision-making.

Professor Ruth Bartlett - National lead for DEM-COMM, post-doctoral training scheme for applied dementia researchers across the ARCs < Back Alzheimer's Europe Conference DEM-COMM researchers in Geneva Professor Ruth Bartlett - National lead for DEM-COMM, post-doctoral training scheme for applied dementia researchers across the ARCs DEM-COMM was out in force at the 34th Alzheimer’s Europe conference in Geneva. We weren’t all wearing DEM-COMM emblazoned bobble hats (next time, maybe?) but there were twenty of us, all presenting work, supporting each other, and generally making the most of being at this important annual event. Our headline act was Dr Esther Loseto-Gerritzen from the University of Nottingham, ARC East Midlands. Esther gave her first plenary talk: ‘Online peer support for people with young onset dementia’ in the largest auditorium I’ve ever been in; it was like the United Nations (see photo below). So very well done to Esther. We’re all proud of you and look forward to supporting you in your new role as Junior Board member and representative of the INTERDEM Academy . Other DEM-COMM fellows shared their work in a parallel session or one of the quick oral presentations (5 minutes), or like me, presented a poster. Some people gave two or three presentations - extra brownie points to you guys. Here’s a list of all works in the order they were presented at the conference, followed by a collage of photos of each person giving their talk. Oral presentations Hannah Wheat ‘Findings of the realist mixed methods, longitudinal evaluation of the D-PACT (dementia personalised care team), primary care based, post-diagnostic, dementia care model’. Amirah Akhtar ‘Depression and dementia risk: exploring the impact of cognitive dysfunction during recurrent depression in middle-aged British South Asians: A qualitative study. Orri McDermott ‘Co-working with local Caribbean communities to raise awareness and normalise talking about dementia’. Neil Chadborn ‘Yaad participatory project: exploring memories with South Asian Communities to understand the context of family of care for people with dementia’. Marie Poole ‘Understanding post-diagnostic dementia support through football organisations to provide person-centred, culturally appropriate support for underserved communities’. James Faraday ‘Better mealtimes for people living with dementia: working with care homes to share good practice’. Rasa Mikelyte ‘Inclusion from the start: co-development and application of a priority setting method for dementia care research’. Emma Elliot ‘Physical activity interventions for hospitalised patients with dementia: systematic review’. Orri McDermott ‘Lived experience of advance care planning and shared decision making’. Rasa Mikelyte ‘Co-designing an easy-read measure of care-related quality of life: reflections on involving people living with dementia and their supporters’. Megan Rose Readman ‘Understanding the experience of hearing loss for people living with lewy body or parkinson’s disease dementia. Emmanuel S. Nwofe ‘DEM-SAFE: co-designing information campaigns to promote brain health and reduce dementia risk in south Asian and African Caribbean communities in the UK’. Amirah Akhtar ‘DEM-SAFE: Living well with dementia for south Asian and African Caribbean communities in the UK’. Posters Jiamin Du ‘Prevalence and correlates of neuro-psychiatric symptoms in individuals referred to a memory clinic, and the distress experienced by their caregivers’. Hannah Wheat ‘Triadic communication during dementia care: a conversation analytical study. Megan Polden ‘Music Make Us! The impact of singing and dancing interventions on people living with dementia’. Tamara Backhouse ‘How can we improve personal care assistance for people living with dementia to reduce refusals of care? A realist synthesis Juanita Hoe ‘Risk Assessment in people living with dementia: a systematic review’. Esther Loseto-Gerritzen ‘Online peer support for people living with dementia: a scoping review’. Hannah Wheat ‘Supporting dementia support workers to adapt to their role within a primary care setting: what works, for whom and in what circumstances’. Ruth Bartlett ‘Building capacity in applied dementia research’. Chris Poyner ‘Personalising domiciliary dementia care via co-designed computational matching: a study protocol’. Ilianna Lourida ‘Data-driven discovery of associations between prescribed medication and dementia risk: a systematic review’. Emmanuel S. Nwofe ‘Dementia risk factors and brain health: a scoping review of interventions to reduce social isolation and loneliness among minority ethnic populations in OECD countries’. Thanks to Sarah Smith for darting around the venue to take these shots, great job! Previous Next

a7ea3c51-ca08-45ba-a500-e478bca6eb43 COMPLETED: Motivating and sustaining engagement of young people in improving their health and that of their communities Prinicpal Investigator: Professor Mary Barker Team: Kathryn Woods-Townsend, University of Southampton, James Toop, Bite Back 2030, Matthew Ryan, University of Southampton, Joanna Sofaer, University of Southampton, Pathik Pathak, University of Southampton Start Date: 1 April 2023 End Date: 30 September 2024 Background Calls by young people for increased involvement in decisions about their health and futures are echoed by WHO and UNICEF. These reflect threats to their health from inequalities and climate change, exacerbated by COVID-19. To be “architects of their own future” and have decision-making power, young people need training and opportunities to build confidence, and structures and processes that allow them to be involved in decision making. Aims We aim to explore how best to engage and maintain engagement of young people in these activities with a view to improving their health and well-being and that of their communities Our specific objectives are to: develop and test a training course for young people in skills to support participatory action research into health and well-being; test the effectiveness of arts-based approaches in engaging young people in health improvement; understand how to create a reliable, scalable and sustainable model for effective youth activism; evaluate democratic innovations to engage young people in decision making processes to influence health policy. What did we find out? Through our project we found that young people can meaningfully participate in decision making on topics that are important to them. During the year young people were engaged in two separate ways: Firstly, BiteBack 2030’s youth advocacy programme was analysed and essential components of its success extracted. Those factors included establishing open two-way channels for communication, Working to create an environment where young people’s and staff views are equally valued, Supporting staff to develop excellent facilitation skills, Investing in young people’s skills, Campaigning on issues that young people feel are important and current and Reviewing success and challenges of each campaigns and adapt activities in response. Secondly, young people were successfully trained in research skills, advocacy and democracy during a 12-week Young Researcher Training Programme. The training programme allowed young people to investigate a health topic that was important to them and collect data from their peers and community. Their projects ranged from looking at exam stress, vaping, benefits of youth participation, to women’s health issues, failures in the PSHE curriculum and vaccine hesitancy. The results from their research went towards creating a set of health recommendations that young people felt should be prioritised for the improved health and wellbeing of young people in Southampton. A Youth Jury was held in July 2024 where the recommendations were refined based on collaboration with the Hampshire and Isle of Wight Integrated Care Partnership. The 12 amended recommendations formed the basis of a manifesto for health which included the following points to be addressed by decision makers: 1.Expand Extra-Curricular Wellness Activities. 2. Improve our methods of handling young people’s mental health by creating accessible services. 3. Respond to Vaping Proactively. 4. Deliver a comprehensive digital health platform for young people. 5.Review the PSHE Curriculum. 6. Encourage the mixed teaching of Sexual and Reproductive Education (SRE) . 7. Cultural & Religious Sensitivity . 8. Information to Parents. 9.Deliver Youth Engagement. 10. Diversify and Expand Work Experience and Financial Support for Prospective Professionals. 11. Establish Panels to Honestly Inform Young People about NHS Careers. 12. Produce Youth- Led Marketing. Evaluation of the effectiveness of the training programme, Youth Jury and Assembly at engaging young people in decision making and the resultant responses from decision makers is still ongoing. Final results will be available from spring 2025. You can see Young People talking about their recommendations here What did we do with this Knowledge? • The recommendations created by the young people within the manifesto for health were presented to the Integrated Care Partnership (ICP) and wider stakeholders in health and wellbeing at the Hampshire and IoW ICP Youth Assembly on 13th November 2024. An action plan was drawn up in collaboration with decision makers to implement the recommendations in practice. These recommendations will go towards informing the delivery of health services for young people In Hampshire and the IoW. • The criteria for a successful youth advocacy/ activism programme provide BiteBack with evidence-based conclusions that they can use to replicate and grow the success of their programmes. The links between youth health and wellbeing and participation in activism programmes was highlighted The findings from this investigation also went towards informing how we run the Young Researcher Training Programme to make sure young people are getting the most out of the experience for their health, wellbeing and future quality of life. See the BiteBack poster image BiteBack poster[83] .png Download PNG • 1.08MB BiteBack visual report (PDF What Next? The learning from this project will go towards informing how future YRTP sessions will be structured and run. For example, the advocacy and links to decision making in this project will be replicated in the next iteration. The next iteration of YRTP begins in December 2025, with a focus on developing a Southampton Youth Voices service. The learnings from BiteBack’s youth activism programme will aid other youth organisations to successfully engage young people in improving their health. This work adds to the growing body of research around the importance of youth participation and its long-term health and wellbeing benefits. Talitha McCleery, 17, took part in the programme and said: "Young people want to and deserve to be, involved in decisions that impact their health and futures. We believe that the people who sit in positions of power must prioritise consulting with young people if they want their decisions to have real change and make a positive impact." Libby Tickner, 17, who also took part, added: "We must all work together - school boards, local government, local charities and national non-governmental organisations - to ensure no opportunity is left wasted." Source: Hampshire youth assembly shares health and wellbeing ideas | Daily Echo

87b19b27-d8c8-4f33-9da0-73ea106dac3c COMPLETED: Mental health Burden of Increased Living costs: Local Support (My BILLS) Principal investigators: Dr. Dianna Smith, Associate Professor, School of Geography and Environmental Science, University of Southampton and Dr Thomas Richardson, Associate Professor of Clinical Psychology, School of Psychology, University of Southampton. Co-investigator: Prof Nisreen Alwan, Associate Professor in Public Health, School of Medicine, University of Southampton. Partners: Southern Health Foundation NHS trust, iTalk (Hampshire IAPT), Talking Change (Portsmouth IAPT Solent NHS Trust), Southampton Citizens Advice Bureau, Portsmouth Citizens Advice Bureau, Southampton City Council, Portsmouth City Council, Hampshire County Council. Starts: 01/01/2023 Ends: 30/09/2024 Background: Poverty can have a significant impact on health. There is lots of research which suggests that being in debt or struggling to pay the bills can lead to poor mental health such as problems with depression and anxiety. There is currently a cost-of-living crisis with record inflation and energy bills. Aim: This research will analyse the impact of the cost-of-living crisis on the mental health of the adults in Hampshire. It will also identify the best pathways for support for people struggling with both mental health and financial problems. Design & Methods: There will be several methods used here. We will interview staff at local financial advice and NHS mental health services for their views. We will use existing data from the NHS and other services about demand for services and if this has changed over recent months with the cost-of-living crisis. We will also interview patients with lived experience about their views. We will conduct new questionnaire-based survey to try to look at the impact of financial problems on mental health over time. Finally, we will look at what the existing research tells us about how the relationship between financial problems and mental health, and if this impacts certain groups of people more strongly than others. Patient & Public Involvement: We will involve those with lived experience and members of the public in the design of our research. They will also form part of a steering group to oversee our work. Finally, they will help us to develop recommendations about local support and how to share the outcomes of our research. Dissemination: We will write up our findings in academic journals and present them at conferences. We will present our finding to the public at an open free event. We will also have a free report summarising the findings, and flyers and videos summarising the research in an accessible way. What did we find out? We found that people who were more worried about the cost of living had worse symptoms of depression and anxiety. However, these worries did not cause their symptoms to get better or worse over time. Interviews with staff and service users showed that financial stress caused feelings of hopelessness and frustration. Many people found it harder to get the health care they needed because of money problems. The cost-of-living crisis also increased pressure on the NHS and its staff. Those who are having therapy for Post-Traumatic Stress Disorder don’t benefit as much if they live in a deprived neighborhood. • An analysis of 86,000 NHS Talking Therapies referrals from 2021 to 2023 is ongoing. What did we do with this Knowledge? Qualitative interviews have given practical suggestions to improve the link between financial and money advice support locally. • Quantitative analysis is ongoing and will be published soon. What are we doing next? Conference presentations 1 Paper published 3 papers under review. Working on submitting several other papers from the findings for publication. Feeding back results to stakeholders. Publications Neighbourhood socioeconomic deprivation associated with poorer psychological therapy outcomes for PTSD: an audit of a single NHS Talking Therapies (IAPT) service | the Cognitive Behaviour Therapist | Cambridge Core

056e2237-0346-49fe-b123-4999c149156a Comparative Effectiveness of Methylphenidate vs. Second‑ and Third‑Line Medications for Children with Attention- Deficit/Hyperactivity Disorder and Autism Chief Investigator: Professor Samuele Cortese, NIHR Research Professor, University of Southampton Co-Investigator: Miguel Garcia Argibay, Senior Research Fellow, University of Southampton Team: Laura Nisbet, Mental Health Nurse, lead neurodevelopmental pathway, Hampshire and Isle of Wight Foundation NHS Trust Partners : Hampshire and Isle of Wight Foundation NHS Trust, University of Southampton Start: 1 10 2024 End: 31 3 2026 Aims of the study: This study wants to find out which medications work best for children who have both Attention Deficit/Hyperactivity Disorder (ADHD) and autism. We are especially interested in learning whether the most commonly used medication for ADHD (called methylphenidate) works well for children who have both ADHD and autism, or if a different medication would be better. Background: Many children with ADHD also have autism. Right now, doctors usually treat ADHD with methylphenidate, but the studies that recommended this medicine didn't include children who have both ADHD and autism. So, we need to see if this medication works as well for children with both conditions. How We Will Do the Study: We are going to look at existing information (data) from the UK and abroad (Sweden), about thousands of children who have both ADHD and autism. We will compare different groups of children: Those who started with methylphenidate (the usual ADHD medicine). Those who started with other types of medication. Those who switched between different medications. Those who did not take any medication. We'll check how often these children needed to go to the hospital or emergency room, if they had any injuries, or if they had issues with self-harm. This will help us figure out which medicines work better and are safer. We will also use special techniques to make sure the comparison between the groups is fair and considers any other factors that might affect the results. Patient, public and community involvement : We believe this study will help doctors treat children with both ADHD and autism better. That’s why we’ll work closely with people who have lived experience of these conditions, both locally and internationally. Locally, we will involve people with lived experience from the Solent Academy of Research and Improvement team and Southampton Primary Care Research Centre. Nationally, we will work with representatives of the ADHD Foundation- Neurodiversity charity, the largest association people with lived experience of ADHD and autism in the UK. Internationally, we’ll partner with representatives of ADHD Europe, which is the largest European group for people with neurodiverse conditions like ADHD and autism. Professor Cortese has ongoing collaborations with all these partners. These people will help us at every stage of the research: designing the study, choosing what results to focus on, and sharing the findings with others. Sharing the Results: Once the study is finished, we will share the results with doctors and healthcare providers to help them make better decisions for treating children with both ADHD and autism. This may lead to changes in treatment guidelines and improve care for these kids. The findings will be published in medical journals, presented at conferences, and shared on public websites and in publications, especially those aimed at families of children with ADHD and autism.

Adoption and Spread Project Outputs Buy-in and Engagement Fit with Health and Social Care Systems Alignment with Health and Social Care Priorities Outcomes and Impact Adoption and Spread Checklist, webinar and resources Quick links: Project Outputs This domain helps you consider aspects that could influence adoption and spread of the use of project outputs both within the organisation or setting where implementation takes places and to other health and social care organisations. Also, what factors may lead to sustainability and the value of such sustainability. No FAQs yet This category doesn't have any FAQs at the moment. Check back later or explore other categories. What should I consider for my project? Adoption and Spread Project Outputs Buy-in and Engagement Fit with Health and Social Care Systems Alignment with Health and Social Care Priorities Outcomes and Impact Case study Spread the Learning Project (SLP) "From the beginning we involved our charity partners as stakeholders and part of the co-production team because we were aware that they would have responsibility for implementing the intervention and therefore understood how it would work in practice. We also considered our skill sets and identified areas where we required additional support and reserved funds to pay for a web designer and negotiated some administrative support. We developed a core team of train the trainers to facilitate adoption and spread of the project and ensure consistency but with negotiated flexibility for partner organisations. We had not anticipated all the branding requirements involved which required consistency with our partner organisation. This involved negotiation and sign off from an executive level. Fortunately, because we had engaged with them from the initial stages , they provided a marketing representative to help us comply with their standards." Take away tips Think about what systems and processes will be required to support adoption of your project Consider how your project fits with other systems and how it will provide value and benefits in different systems

Impact Since ARC Wessex began in October 2019 it has focussed on the tackling the health and care challenges of our communities and beyond. In addition to our four research themes, ARC Wessex has developed a Mental Health Hub and secured funding to look at the challenges and needs of our social care systems. We also lead on the National efforts to increase the number of researchers working on dementia (DEM-COM ) and the Healthy Ageing, Dementia and Frailty National Priority Programme with collaborated with the ARC network across England. Here we show examples of the impact of our completed research and the benefits to patients and the wider communities in Wessex. Read ARC at 5 - The story so Far | here Improving physical activity and lives in care homes The ImPACT study looked to create and test the feasibility of using trained exercise volunteers in care home settings to increase the amount of physical activity for older people living there. Are we making the right decisions on nursing numbers? In England a general yardstick is used to work out the number of nursing staff needed to look after patients on a ward in hospital. Recent research has now updated NHS guidance with its findings Online tool for Long Covid support A website to support people living with Long Covid offers a symptom checker, advice on seeking support, and encourages people to talk about their symptoms with professionals, friends and family. Clever help matches care and skills for district nurses The complexity of managing a busy team of district nurses has been made simpler by using computer and mathematical modelling to schedule visits - and the system could go further. Researchers test new ways to help tackle childhood obesity In England, over a fifth of children aged 4–5 years were classed as overweight or obese in 2021/22. A team of ARC Wessex researchers has been testing a way to help families improve kids diets. Building research capacity in Wessex 60 + 10 + £600K Invested We have trained more than 50 health and care professionals to make their first steps into research ... more than 10 PhD students are making their next move in research ..and growing numbers of Post Doctorate researchers getting to grips with the issues that effect us all

Project Outputs Project Outputs This domain helps you consider the deliverables or what is to be produced as a result of your project. These are the project outputs . Outputs can be singular or multiple and include any of the following: policy guideline(s), innovation, intervention, website or a tool. No FAQs yet This category doesn't have any FAQs at the moment. Check back later or explore other categories. What should I consider for my project? Adoption and Spread Project Outputs Buy-in and Engagement Fit with Health and Social Care Systems Alignment with Health and Social Care Priorities Outcomes and Impact Project Outputs Buy-in and Engagement Fit with Health and Social Care Systems Alignment with Health and Social Care Priorities Outcomes and Impact Adoption and Spread Checklist, webinar and resources Quick links: Case study “ As we had early discussions t o identify our project outputs within our team, we were able to plan resources required to support this. For example, we knew that one of our key outputs would be a website to be made freely available to all. However, as we engaged with our wider networks of stakeholders across d ifferent care homes, we realised that some also expressed interest in having a printed training resource which they could share with colleagues when hosting in-person workshops . This presented a challenge initially as we had not costed for the development of these printed materials. However, as we were still at an early stage of the project, we were able to apply for a small grant which helped accommodate these costs. Stakeholder involvement was invaluable to ensuring that our project outputs matched their needs . We will take this learning forward in future projects and consult with a range of stakeholders initially. This will help to support our project outputs to be available and accessible in formats which best fit the needs of those using them.” Person-centred care training resource for care homes project (PCCP) Take away tips Early engagement with stakeholders about what project outputs are helpful for them can enhance their longer-term value and utility Early engagement also ensures that resources can be prioritised and financially supported

Glossary of Terms Accessibility Accessibility is about making sure that things can be accessed and used by as many people as possible. This includes people with impaired vision, motor difficulties, cognitive impairments, learning disabilities and deafness or impaired hearing. APIF The ARC Public Involvement Forum - this is our strategic PPIEP group. It is composed of Theme Public Advisors, the PPIEP team and staff links for each research theme. ARC funded or ARC supported studies Our research may be directly financed by our ARC ('ARC funded') or we may provide support, such as by providing staff resource ('ARC supported'). ARC or Applied Research Collaboration ARCs support applied health and care research that responds to, and meets, the needs of local populations and local health and care systems. They are funded by the NIHR. There are 15 funded across England. ARC Partnership Board This is a decision-making body for ARC Wessex. It meets quarterly to set priorities and directly contribute to, support delivery and monitor performance of our programme. The board membership has two public representatives. BRC or Biomedical Research Centre BRCs bring together academics and clinicians to translate lab-based scientific breakthroughs into potential new treatments, diagnostics and medical technologies. There are 20 NIHR funded BRCs in England. Our Strategic Lead for PPI/E also leads PPI for the Southampton BRC. Our researchers also work closely with staff in the BRC. CCF or Clinical Commissioning Facility They manage and administer the ARC funding scheme. We report to them annually and will have to report our progress against this strategy. CLAHRC or Collaborations for Leadership in Applied Health Research and Care This is the term for the organisations which preceded the ARCs. They were also funded by the NIHR and had a similar function. This funding scheme closed in Sept 2019 when the ARC scheme succeeded them. Communications and Partnership Manager This role has responsibility for shaping and delivering our communications, and supporting productive relationships across our partners. This post is currently filled by Jamie Stevenson. CRF or Clinical Research Facility CRFs are purpose built facilities in NHS hospitals where researchers can deliver early-phase and complex studies. There are 22 NIHR funded CRFs in England. Our Strategic Lead for PPI/E also leads PPI for the Southampton CRF. Engagement Where information and knowledge is provided and shared with the public. Equality impact assessments The equality impact assessment is a systematic and evidence-based tool, which enables us to consider the likely impact of work on different groups of people. They help ensure that activities do not discriminate against anyone and that, where possible, we promote equality of opportunity. Executive Leadership Group This group operationalises strategy, policy and the research programme. The group is led by the ARC Director; the Strategic Lead for PPI/E and Communications and the Partnership Manager are members. Fellowship Fellowships are a type of research funding which are awarded to individuals. For example, a fellowship may enable a person to complete the next stage of their academic career training. Higher Education Institutes This term describes any institution that provides education post-secondary education level, for example Universities. INCLUDE This guidance provides a suggested framework of questions to guide the deliberations of funders, researchers and delivery teams as they design and assess clinical research proposals to improve inclusion of under-served groups in clinical research. Read more . INVOLVE INVOLVE was a national coordinating centre for public involvement in health and care. It was funded by the National Institute for Health Research between 1996-2020. A new Centre for Engagement and Dissemination aims to build on the work of INVOLVE. Lifelab A unique, state-of-the-art teaching laboratory dedicated to improving adolescent health by giving school students opportunities to learn first-hand the science behind the health messages. Logic modelling and theory of change A theory of change is a description of why a particular way of working will be effective, showing how change happens in the short, medium and long term to achieve its intended impact. Logic models are a way to graphically represent this theory. Our Strategic Lead for PPI/E supervises a PhD student who has developed a PPI/E planning and impact tool, underpinned by the theory of change and a logic model. We aim to use this to capture impacts of the ARC PPI/E programme. Manager for PPI/E This role has responsibility for shaping and delivering our PPI/E strategy. They also lead PPI/E for other NIHR organisations. The post is currently filled by Annemarie Henkinson. Microsoft Accessibility Checker A free tool available in Office 365. It finds most accessibility issues and explains why each might be a potential problem for someone with a disability. It also offers suggestions on how to resolve each issue. Read more . NHS providers This term describes any organisation that provides NHS services. This includes hospitals, community trusts, GP services, pharmacies and clinical commissioning groups. NIHR or National Institute for Health and Care Research The National Institute for Health Research is funded by the Department of Health and Social Care. It funds health and care research, providing the people, facilities and technology for research to thrive. Patient and public involvement Research carried out ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’ or ‘for’ them. Members of the public can be involved at all stages of a research project and across all levels of research organisations. PhD award A PhD award is a research award which supports an individual to study for their doctorate. PPI Champions Our PPI Champions are members of the public. They have a strategic role in our organisation. This includes working closely with the leadership of one of our research themes and with our PPI/E team. We try to have two PPI Champions per research theme. PPI Officer Our PPI Officer is a member of staff dedicated to supporting good PPI/EP. PPI/EP An acronym for patient and public involvement engagement and participation. Used to describe work and projects which connect or encompass both activities. Population risk stratification and intervention to prevent childhood obesity This project aims to test the feasibility and acceptability of a childhood obesity prediction tool and online platform for health visitors to use when supporting families to lead healthier life styles. The involvement work will focus on working with the underserved, such as those from deprived or ethnic minority groups, who are most at risk of childhood obesity. Principal Investigator In studies or trials, this term is often used to describe the person who holds the research grant. They are the lead researcher for the project, Public Engagement in Research Unit This unit exists to inspire and support high quality public engagement with research across all disciplines at the University of Southampton. Public Policy Unit This unit, at the University of Southampton, helps researchers connect with policymakers to better support evidence-based policymaking. Socio economic status This term describes an individual's or family's economic and social position. It is a predictor of outcomes across the life span. Staff links Each theme has a nominated PPI/E staff link. This is a member of their research team. They are members of our strategic PPI/E group, APIF. Sure Start Sure Start is a government area-based initiative that was founded with the aim of 'giving children the best possible start in life' through improvement of childcare, early education, health and family support. Theme Public Advisors OurTheme Public Advisors are members of the public. They have a strategic role in our organisation. This includes working closely with the leadership of one of our research themes and with our PPIEP team. We try to have twoTheme Public Advisors per research theme. PPIOfficer Our PPIOfficer is a member of staff dedicated to supporting good PPIEP. Training Needs Analysis This is a process to determine all the training that needs to be completed (and when) to allow someone to complete their job as effectively as possible, as well as progress and grow. UK Standards for Public Involvement The standards are a framework for what good public involvement in research looks like. They provide clear, concise statements of effective public involvement against which improvement can be assessed. They were developed as a partnership of organisations across the UK, including the NIHR. Underserved Underserved is the term we have chosen to use to describe people who are less well included in research. We prefer this term because it highlights that the research community needs to provide a better service for these individuals. Wessex Wessex is the region covering Dorset, Hampshire, the Isle of Wight and South Wiltshire.

28e06f68-57c1-47e6-a549-0943eeae5264 COMPLETED: OPTIM Park - Optimization of community resources and systems of support to enhance the process of living with Parkinson’s Disease: a multisectoral intervention COMPLETE: Optimization of community resources and systems of support to enhance the process of living with Parkinson’s Disease: a multisectoral intervention (Linked to PARTNERS) Chief Investigator: Professor Mari Carmen Portillo – University of Southampton Funder : The Optim Park, April 2019-December 2022, aimed to establish the feasibility and acceptability of an intervention that will enhance the process of living with PD for patients and family-carers by building multisectoral care pathways, with a special focus on how to optimize the use of resources and systems of support in the community in disadvantaged populations of different European countries. The Optim Park consortium was composed of 4 countries (Denmark, Norway, Spain and UK (coordinators)). running according to plans considering we are reporting a period of 9 months (the project starting in April 2019). The consortium has worked efficiently and important professional and personal links have been established across partners. A total of 6 WPs were completed: 1. Patient and public involvement 2. Evidence on systems of support and integrated care for people with PD 3. Roles and working relationships between agencies and levels of care 4. Feasibility trial 5. Dissemination and 6. Management. The research design of the Optim Park project included reviews of evidence and statutory documents, qualitative research (166 interviews with people with PD, carers, stakeholders and professionals), and quantitative research (feasibility trial of a designed intervention with 220 participants including people with PD and family carers). Our findings led to the design of an intervention that consisted of introducing the PD coordinator role and personalised assessment of needs, prioritisation of needs and referral to community resources with follow up. We have developed a very strong and sustainable PPI plan for this project, and we have liaised with key national and international voluntary organisations for PD and clinical sites, which were essential for the delivery and implementation plans of our work. Dissemination of the project took place through scientific and lay routes. Additional funding has been secured throughout the life of the Optim Park project for next research steps, the PD Coordinator role in the UK, exchange opportunities for PhD candidates and the development of young researchers and postdoctoral mobility. These are our published papers Portillo, M.C. , Anita Haahr, Navarta-Sánchez, M.V. (2021). Management, levels of support, quality of life, and social inclusion in Parkinson’s disease: interventions, innovation, and practice development, Parkinson's Disease, DOI: 10 1155/2021/4681251. Portillo, M. C., Haahr, A., & Navarta-Sánchez, M. V. (2021). Management, levels of support, quality of life, and social inclusion in Parkinson’s disease: interventions, innovation, and practice development . Parkinson´s Disease , https://doi.org/10.1155/2021/4681251 . Soilemezi, D. , Palmar-Santos, A., Navarta-Sánchez, M.V., Roberts, H., Pedraz-Marcos, A., Haahr, A., Sørensen, D., Bragstad, L., Hjelle, E., Bjørnsen Haavaag, S., Portillo, M.C . (2022), Understanding support systems for Parkinson's disease management in community settings: A cross-national qualitative study. HealthExpectations, https://doi.org/10.1111/hex.13691 . Soilemezi, D. , Roberts, H., Navarta-Sánchez, M.V. Kunkel, K., Ewings,S., Reidy, C., Portillo, M.C. (2022). Managing Parkinson’s during the COVID-19 pandemic: perspectives from people living with Parkinson’s and health professionals. Journal of Clinical Nursing , DOI: 10.1111/jocn.16367. *Nielsen, T. , Kruse, N., Haahr, A., Hjelle, E.G., Bragstad, L.K., Palmar-Santos, A., Navarta-Sánchez, M.V., Pedraz-Marcos, A., Bartolomeu Pires, S., Roberts, H., Portillo, M.C . (2022). Exploring health and social services in Denmark, Norway, Spain and the United Kingdom for the development of Parkinson's care pathways. A document analysis. Health and Social Care in the Community, doi:10.1111/hsc.13970. Vester, L.B. , Haahr, A., Nielsen, T.L., Bartolomeu, S., Portillo, M.C. (2023), A Parkinson care-coordinator may make a difference: A scoping review on multi-sectoral integrated care initiatives for people living with Parkinson's disease and their caregivers. Patient Education and Counselling, doi: 10.1016/j.pec.2023.107931. Hjele, E.G. , Rønn-Smidt, H., Haahr, A., Haavaag, S., Sørensen, D., Navarta-Sánchez, V. Portillo, M.C., Bragstad, L.K. (2024). Filling the gap in service provision Partners as family carers to persons with Parkinson’s disease: A Scandinavian perspective. Chronic Illness, DOI:10.1177/17423953231174470. Navarta-Sánchez, M.V. , Palmar-Santos, A., Pedraz-Marcos, A., Reidy, R., Soilemezi, D., Haahr, A., Sørensen, D., Rønn Smidt, H., Kildal Bragstad, L., Gabrielsen Hjelle, E., Bjørnsen Haavaag, S., Portillo, M.C. (2023). Perspectives of people with Parkinson's disease and family carers about disease management in community settings: a cross-country qualitative study. Journal of Clinical Nursing, https://doi.org/10.1111/jocn.16636 . Pedraz-Marcos A, Palmar-Santos AM, Portillo MC, Navarta-Sánchez MV. Management of Parkinson's in the Community: Interests and Expectations of People Living with Parkinson's, Family Carers, Healthcare Professionals and Stakeholders in Spain. Glob Qual Nurs Res. 2025 Nov 3;12:23333936251384434. Who did we work with? Coordinator/chief investigator of the project: United Kingdom : University of Southampton, Professor Mari Carmen Portillo Country leads : Spain: Autonomous University Madrid, Dr Victoria Navarta Sanchez Spain, Fundación La Princesa, Dr Lydia López Denmark: VIA University College, Dr Anita Haahr Norway: University of Oslo, Dr Line Kildal Partners: Parkinson’s disease associations in the four countries