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Meet our academy - Interns, PhDs and Post-Docs We all grow throughout our lives, and the our Academy is here to help expand the number of people in Wessex conducting high quality applied health research. It's part of our legacy to the health and social care community across Hampshire, Dorset and the Isle of Wight. This page lists those people who have joined us in their journey to enrich our research community. There are internships for people starting their research journey, PhD awards for those wanting to develop their experience and research career, and Post-Doctoral Awards to help drive the research agenda in Wessex. Internships Mr Mark Green Justin Strain Anna Wells Dr Cheska Ball Dr Sofia Michopoulou Naomi Purdie Megan Pound Cherish Boxall Emma Stennett Jan Cavolina Dr Camilla Holmes Mrs Cathy Pogson Ms Deborah Butler Samuel Page Dr Theo Akudjedu Mrs Victoria Tweedy Ms Jo Murfin Ms Lauren Green Ms Lucy Bakewell Ms Danni Swaithe Dr Eloise Radcliffe Ms Lisa Osborn- Jenkins Ms Rachel Middle Ms Rayan Taher Mrs Stefanie Gibb Mrs Krisi Downton Mrs Eirini Manali Ms Kim Yun Jung Emily Leach Madison Geeves Nicola Legg Nour Odeh Paul New Raquel Lima Rebecca Verling Catarina Fandinga Daniella Matteccui Andrea Brimson Clare Phillips Kirtsy Ballinger Clare Pinder Jennifer Malpass Wellington Tshabangu Niall Berry Christina Leadley Sara Ribeiro Blue Pike Harriet Wilding Joshua Bailey Katherine McGinn Katie Brown Sarah Curtis Kate Gillet Ellenor (Elle) Gray Bhavin Dedhia Sharon Court Matthew Wood Dr Carolina Machuca-Vargas Sawsen Sabbah Dr Donna Austin Jia Pei Ong From: Portsmouth Hospitals University NHS Trust Ambulatory care: exploring an alternative care pathway to support patients with a diagnosis of Heart Failure Long Term Conditions theme From: Hampshire Hospitals NHS Foundation Trust Project Title: Effects of previous traumatic pain memories on the current pain experience for people with haemophilia Brief summary of project: Haemophilia is a life-long condition which can cause repeated bleeding into muscles and joints, leading to synovial hypertrophy, destruction of the articular cartilage and haemophilic arthropathy. Due to a lack of treatment in their youth, many adults with severe haemophilia will have experienced multiple painful bleeding episodes, and research suggests that 50% of people with haemophilia (PWH) report experiencing chronic pain. Currently, the factors that drive and influence the chronic pain cycle in this patient group are poorly understood. Many PWH display physical and psychological symptoms which could be linked to post-traumatic stress but there is very little mention of this concept in the literature. This six month internship project consists of a scoping review of the literature and some initial patient and public involvement (PPI) work, to help inform further patient-centred co-designed research. The overarching aim is to gain a deeper understanding of the interaction between psychological and physical influences on chronic pain, to help improve the care we provide and to improve the health, wellbeing and health outcomes for PWH. Long Term Conditions theme Supervisors and organisations involved: Academic Supervisor: Dr Debra Gray, University of Winchester Mentor: Dr David Stephensen, Clinical Academic, Deputy Director of East Kent Hospitals University NHS Foundation Trust Supervisor: Dr Kelly Hislop Lennie, University of Southampton; Long Term Conditions Research Group Hear what Anna has to say about her internship journey From: Southern Health NHS Foundation Trust Project Title: A qualitative evaluation of the experiences of individuals with persistent pain participating in online pain management interventions. Brief Summary of Project: This study aims to explore the experiences of individuals with persistent pain participating in online pain management interventions. It involves a systematic review and narrative synthesis of literature regarding individuals' experiences of online pain management interventions. The study will also conduct up to 10 semi-structured interviews with individuals who have recently undertaken an online group pain management programme within Southern Health NHS Foundation Trust's South West Hampshire Pain Management Service. Long Term Conditions and Ageing and Dementia themes Supervisors and Organisations involved: Supervisor - Dr Euan Sadler. School of Health Sciences, University of Southampton. Southern Health NHS Foundation Trust. Ageing and Dementia Theme. Supervisor - Dr Lindsay Welch. School of Health Sciences, University of Southampton. Long Term Conditions Theme. Organisations – NIHR ARC Wessex, University of Southampton, Southern Health NHS Foundation Trust. Search strategy document See what Justin thought about his internship and what it means for the future From: Dorset County Hospital NHS Foundation Trust Project title: A systematic review of the effects of medical and allied health professional staffing focussed on junior doctors shift patterns and it effects wellbeing and burn-out Brief summary of project: I am writing a systematic review and am gathering data on Junior Doctors from Dorset County Hospital via a survey on the topic of shift-work, and how this may, or may not, impact upon burnout amongst this cohort. I will be focusing on burnout, fatigue and well-being. The overall aim is to identify features of shift-work and the rostering process that may contribute to burnout, so as to encourage the implementation of change where possible and improve the working-lives of Junior Doctors. I am also involved in the on-going Pan-Dorset rostering and job-planning project which has a focus on the rostering system for Junior Doctors. I hope to bring my research findings to this project so as to positively contribute to the improvement of rostering for Junior Doctors across Dorset. Workforce and Health Systems theme Supervisors: Alastair Hutchison, Medical Director and Consultant, Dorset County Hospitals NHS Foundation Trust Peter Griffiths, Chair of Health Services Research, NIHR Senior Investigator, University of Southampton Zoe Sheppard, Head of Research, Dorset County Hospitals NHS Foundation Trust See what Cheska has to say about the internship Project title: Biomarker Research Assessing Inflammation in Neurodegeneration (BRAIN) Brief summary of project: This project aims to improve the diagnosis of dementia and enable early identification of patients who are likely to experience rapid progression of their symptoms. There are over 850,000 people living with dementia in the UK, and it takes on average over 2 years from symptom onset to diagnosis. Systemic inflammation is a driving force that accelerates dementia progression. Markers of inflammation from body fluids may help evaluate dementia progression. This project will measure targeted biomarkers of inflammation in patient samples and assess their value in early diagnosis of dementia. Supervisors and organisations involved: Academic Supervisor: Prof Jessica Teeling, Experimental Neuroimmmunology, University of Southampton Clinical Supervisor: Prof Chris Kipps, Consultant Neurologist, University Hospital Southampton NHS Foundation Trust Ageing and Dementia Theme From: Southern Health NHS Foundation Trust Project title: How are the physical health needs of older people addressed in older peoples mental health (OPMH)? - A systematic review of literature Brief summary of project: My aim is to develop my research skills by completing a systematic literature review looking at how the physical health needs of older people are addressed in those with mental health diagnosis. This systematic review will enable me to search for relevant literature, and extract and discuss the findings. This will enable me to gain evidence to inform clinical practice within the trust. Supervisors and organisations involved: Supervisor - Michele Board - Academic supervisor Bournemouth university Abby Barkham – Clinical Supervisor Southern Health NHS Foundation Trust Liz Taylor supporting manager, Southern Health NHS Foundation Trust Ageing and Dementia Theme Naomi's Internship journey From : University of Portsmouth Project title: Co-production with and for vulnerable young people Brief summary of project: This was a 3-month part time internship resulting in 3 key outputs; a podcast discussing the 'Tracking Vulnerable Children in Schools' project introduced due to the Covid-19 lockdowns, a blog post exploring how co-production could benefit Portsmouth as a 'restorative city' and a report following from my interviews with young care leavers, discussing their experiences of service provision in care, which also fed into the larger PSCP Neglect Deep Dive report and findings. Healthy Communities theme Supervisors and organisations involved: Supervisor: Wendy Sims-Schouten (University of Portsmouth) Organisations: Portsmouth Safeguarding Children Partnership and Portsmouth City Council Read her blog here Cherish Boxall is a Clinical Trials Manager in Southampton and her internship project looked at SWAT priorities to improve the evidence to inform recruitment and retention practice in clinical trials. Here's what she thought of the internship From :University Hospital Southampton NHS Foundation Trust How nutritional status is assessed and monitored in patients with liver cirrhosis in routine Hepatology outpatient clinics Long Term Conditions theme From: University Hospital Southampton NHS Foundation Trust Urine output: how and why it is monitored in acute medical environments? Ageing and Dementia theme Jan is a paediatric Occupational Therapist in Poole. Project: Are school motor skill programmes that are designed by occupational therapists, physiotherapists and/or educational psychologists but delivered by school staff effective in improving the motor skills of typically developing children aged between 4-11years with motor skill difficulties and therefore improving functional tasks? From : University Hospitals Dorset NHS Foundation Trust What are older people’s experiences of frailty prevention interventions in acute hospitals? A scoping review Ageing and Dementia theme From: Portsmouth Hospitals University NHS Trust Comprehensive medication review using the validated STOPP-START toolkit in haemodialysis patients identified to have a frailty score of 5 or more using the validated widely used clinical frailty scale (CFS) Ageing and Dementia theme From : Dorset County Hospital NHS Foundation Trust Establish current practice and challenges in the treatment of pubic rami fractures Ageing and Dementia theme From: Bournemouth University Dementia, Ageing, Radiography, Neuroimaging/ Clinical Neuroscience Ageing and Dementia theme From : Dorset County Hospital NHS Foundation Trust Is there a link between Covid 19 and developing Dementia? Ageing and Dementia theme From : University Hospital Southampton NHS Foundation Trust Optimisation of nutrition and frailty prior to cardiac surgery Ageing and Dementia theme From : University Hospital Southampton NHS Foundation Trust Identifying hidden vulnerabilities in patients who present with Major Trauma: a retrospective case note review to inform service development Healthy Communities theme From : University of Winchester To be able to provide standard IF nutritional guidelines - missing at present Healthy Communities theme From: University Hospitals Dorset NHS Foundation Trust To formulate a research question around the Attentional Deficits on Stroke Recovery Long Term Conditions theme From : University of Southampton People living with cancer that is treatable but not curable and their partners: changes in roles, relationships and social networks over time Long Term Conditions theme From : University Hospital Southampton NHS Foundation Trust Self-management of back pain and musculoskeletal long-term conditions Long Term Conditions theme From : Isle of Wight NHS Trust Severe Mental Illness and digital literacy Long Term Conditions theme From : Hampshire Hospitals NHS Foundation Trust The Quality of Life of Pseudomyxoma Peritonei Patients: A Systematic Review Long Term Conditions theme Researcher Initiation Award From : Dorset County Hospital NHS Foundation Trust Long Term Conditions theme From : University Hospitals Dorset NHS Foundation Trust, Bournemouth University What is the evidence for the use of Cognitive Rehabilitation Therapy for stroke interventions in Early Supported Discharge? Long Term Conditions & Ageing and Dementia themes From : University Hospital Southampton NHS Foundation Trust Workforce and Health Systems, Critical Care Workforce and Health Systems theme Project title: Social network facilitated engagement in people who are Homeless to address InEqualities in alcohol-related Liver Disease (SHIELD): A pilot study Plain English summary People who are homeless (PWAH) are known to have low rates of engagement with community health services. Poor engagement with liver care services has consequences for PWAH and is likely to contribute to the worse outcomes. Barriers and facilitators to the alcohol related liver disease care pathway for PWAH have not been explored and the level of engagement by this population is poorly quantified. During the internship I will work on a small pilot study (The SHIELD study) that is investigating the potential to use social networks to identify early-stage liver disease in this group. The research outcomes achieved from this award will greatly impact on the determining success of feasibility of the SHIELD study. My project entails interviews with PWAH in community. This is a unique opportunity for me to meet them as healthy individuals with potential disease progression in community as my current care predominantly focuses on patients who are engaged with the healthcare team in secondary care. I will gain a better understanding of our patient group by networking with them through research. Interacting with this group and listening to their thoughts on alcohol and alcohol related liver disease will enhance my patient-centred care. I will also get an opportunity to learn delivering Patient and Public Involvement and Engagement (PPIE) activity in research. Academic Supervisor: Dr Ryan Buchanan, Associate Professor of Hepatology, Honorary Consultant Hepatologist, University of Southampton Mentor : Dr Kinda Ibrahim, Academic Geriatric Medicine, University of Southampton Dr Andy Fox, Consultant pharmacist in Medicines Safety, University Hospital Southampton NHS Foundation Trust Project Title: Understanding the thoughts and experiences of potential users of 3D-printed foot orthoses from vulnerable patient groups. I am a Podiatrist working clinically within Solent NHS Trust. I have research experience in Musculoskeletal and Rheumatic diseases, chronic pain and foot orthoses. In this project I aim to undertake scoping of the literature and gather feedback and advice from potential vulnerable ‘users’ of foot orthoses to collect group-constructed views on barriers and drivers to foot orthoses prescription. Respiratory Physiologist, Hampshire Hospitals NHS Foundation Trust Project title: Accessing the efficacy of the Forced Oscillation Technique (FOT) in routine clinical practice at HHFT for diagnosis and management of asthma and COPD Dental Nurse, University of Portsmouth Dental Academy Project title: Brush UP-SEN: Improving the oral health of children with special educational needs. A feasibility study Research lead, Oaks Healthcare NHS GP Practice Project title: Service evaluation of the barriers and facilitator of research delivery in Primary Care Physiotherapist, HMP Winchester Project title: The Prison Pain Project - Chronic Pain management in Secure Settings I graduated from physio school in 2006 at the University of Southampton and gained a clinical masters’ degree in sports physiotherapy from the University of Bath. I currently provide physiotherapy care to 3 prisons in the south central region. My special interest is chronic pain management and my internship project aims to investigate how chronic pain programmes can support the safer prescribing of pain medication in the prison system. I live in Stubbington, Fareham with my wife and we have to children who are students too. Neonatal Sister, University Hospital Southampton NHS Foundation Trust Project title: Rapid, standardised neurodevelopment surveillance at age 2 years in neonatal follow-up clinics on the INTERGROWTH-21st Neurodevelopment Physiotherapist, Isle of Wight NHS Trust PARTNERS project : Development and implementation of a digital tool for multisectoral support and management of long term condition. Data Science Internship Paediatric Dietitian, University Hospital Southampton NHS Foundation Trust Project title: To evaluate the implementation of a nutrition pathway in infants with congenital heart disease (CHD) and the relationship to growth. Improving access to and the quality of care for persons living with Fibromyalgia Syndrome (FMS) From: Hampshire Hospitals NHS Trust, Basingstoke and North Hampshire Hospital Project: Patient reported outcome measures (PROMs) and experience measures (PREMs) further within MSK physiotherapy out-patients Workforce & Health Systems Theme From: University Hospital Southampton NHS Foundation Trust Project Title: Alcohol Use Disorder (AUD) Ageing & Dementia theme From: Southampton University Hospital Foundation Trust Project: Transformational development in the management of adults with Cystic Fibrosis (AwCF): investigating the nutritional consequences of CFTR modulator therapy, Elexacaftor Tezacaftor-Ivacafor (Kaftrio) Workforce and Health Systems theme From: Hampshire Hospitals NHS Trust Project: Understanding the perspective of those with T1DE on the dietary information and approaches that would best meet their needs during their treatment with the ComPASSION team Long Term Conditions theme From: Solent NHS Trust Project: Oral health research for vulnerable community groups Healthy Communities theme From: Portsmouth Hospitals University NHS Trust Project: Literature review of tools used to determine staffing requirements for Allied Health Professionals Workforce and Health Systems theme From: Portsmouth Hospitals University NHS Trust Project: Systematic review of current literature supporting the use of staffing tools for physiotherapist Workforce and Health Systems theme From: Dorset County Hospital NHS Foundation Trust Project: Pelvic Floor Dysfunction Long Term Condtions theme Summary of Project: A community collaboration and evaluation of sustained digital adoption in people with long term respiratory disease who are digitally excluded: a mix methods study. Long Term Conditions theme Supervisors: Dr. Lindsay Welsh and Dr. Kate Lippiett. Project title: The use of psychological formulation to support person-centred assessment and care planning for people living with mental health long term conditions in the community: a systematic review Involved supervisors and organisations: Dr Leire Ambrosio, University of Southampton Dr Lyn Ellett, University of Southampton Isle of Wight NHS Trust About: Blue currently works across Community Mental Health Rehabilitation and Early Intervention in Psychosis Teams on the Isle of Wight delivering CBT/CBTp and supporting various aspects of service development. Blue is am aiming to utilise the internship to undertake a project exploring the existing literature base for the impact of using psychological formulation at assessment in community mental health services on person-centred care and care planning. Long term conditions theme. Brief summary of project: A literature review and PPIE project to explore the impact of long-term sickness absence on the mental health of the Armed Forces population. Place of work: Occupational Therapist working in Solent NHS, community adult mental health service. Supervisors involved: Dr Leisle Ezekiel, University of Southampton Dr Kate King, Royal Navy. From: Solent Mind Project Title: A service evaluation for a peer-led crisis support service Long Term Conditions / Ageing & Dementia theme From: Southern Health NHS Trust Project: Selective and non-reporting in clinical psychopharmacology trials: A systematic review and meta-analysis of publicly registered phase 2, 3 or 4 randomised controlled trials of pharmacologic agents without regulatory approval for unapproved indications in adults. Long Term Conditions theme From: Dorset Healthcare NHS Project: Exploring the Role of Social Support and Resilience in Perinatal Mental Health. Healthy Communities theme Project Title: The impact of storytelling on the mental health and wellbeing of the mental health workforce: a literature review. From: Hampshire and Isle of Wight Integrated Care Board About I am the Lived Experience Lead for the No Wrong Door Community Mental Health Transformation Programme at the Hampshire and Isle of Wight Integrated Care Board. Storytelling, and the impact it can have on one’s mental health, is a passion of mine and I am keen to explore the topic further. I am particularly keen to explore the impact storytelling can have on the mental health of professionals working in mental health services. I plan to do this via a review of the current literature. This aligns with the Health and Social Care Workforce theme. From: Living Well Partnership, Primary Care Network, Southampton Project: How can specialist nurse services in primary care support patients with long term conditions? Long Term Conditions theme Elle Gray is a Clinical Associate Psychologist with Solent NHS Project Title: Radical Self Compassion for Healthcare staff Brief Summary of the project: A scoping study on how to deliver a short version of the evidence based Mindful Self Compassion (MSC) intervention – Self Compassion for Healthcare Workers (SCHW) in range of Adult Mental Health Teams in the Solent Region. Mental Health teams face myriad stressors when holding complex patient risks alongside repeatedly hearing details of significant traumatic incidents, leading to the highest staff stress, sickness and burnout across the NHS workforce. This study will examine the factors relevant to all stakeholders when accessing this unique training – what conditions need to be present to deliver the right “dose” to an already overstretched workforce. Supervisors: Naomi Klepacz |PhD|CPsychol|NIHR Health Services Researcher (Workforce Wellbeing) Mila de Koning - Di Mindfulness Academie, Amsterdam, Self Compassion Trainer and Health Workforce specialist Workforce and Health Systems theme From: University of Portsmouth Dental Academy Project Title: A literature review of Dental care experiences of the underserved communities Bhavin is a dentist and academic with experience of 15 years of NHS Clinical Dentistry and academic experience of 4 years. Bhavin graduated in India and requalified in the United Kingdom through the International Qualifying Examination (IQE). Bhavin’s educational experience is of PG Certificate in Dental Law and Ethics and PG Diploma in Medical Law and Ethics and they are passionate about inclusive healthcare delivery and practices. Healthy Communities theme From: Portsmouth Hospitals University NHS Trust Sharon is a qualified teacher and youth worker with over thirty years experience of working with children and young people. She worked for ten years as a freelancer, developing and managing community engagement programmes including projects funded by the Heritage Lottery Fund and the Armed Forces Community Covenant. Prior to joining the NHS, Sharon worked with a number of local organisations including Portsmouth Cathedral where she devised and led their community engagement programme. This four year partnership included work funded by Awards for All and Arts Council England. Sharon brings a wealth of community experience and networks to her role as the Patient and Public Involvement Facilitator, where she now works supporting a successful PPIE group, including a young people’s PPIE group and creating new opportunities to engage the public with healthcare research. Sharon’s research internship with ARC Wessex is exploring whether Social Pedagogy is a good fit for PPIE practice, with a view to undertaking further, more in-depth research in the future. Long Term Conditions theme From: Dorset County Hospital Project: Development of a measure to support the WASP Service Evaluation tool. Long Term Conditions / Workforce and Health Systems theme From: University of Portsmouth Dental Academy / NIHR CRN Wessex Associate Head (Research & Innovation) / Senior Lecturer in Dental Public Health/ CRN Wessex-Oral and Dental Specialty Lead Project summary: Carolina’s research interest is currently in health data analysis and geo-mapping to understand of spatial relationships between health, the environment, and socio-economic determinants, leading to more targeted and effective interventions to improve population health and well-being. Long Term Conditions theme From: North Hampshire Hospitals NHS Foundation Trust Project: Are proactive deprescribing interventions, alongside a comprehensive geriatric assessment, associated with improved outcomes in the older and/or frail population Ageing & Dementia / Long Term Conditions theme From: University Hospital Southampton Foundation Trust Project: What are the informational needs of parents regarding their child’s critical illness in the acute period of a PICU admission Long Term Conditions theme From: University Hospital Southampton Foundation Trust Project: Systematic review of effects of opioid use in adult patients with ventilation in Intensive Care Unit Ageing & Dementia theme PhD Fellowship Samantha Belfrage Qian Yue Tan Alex Smith Sandra Bartolomeu Pires Anna Badley Sam Porter Rosie Harper Samuel Alugsi Jenny Barker Suzanne Shepperd Linda Amungwa Developing and evaluating the feasibility of a community-based health literacy intervention to empower socially disadvantaged parents/carers of children aged 0-4 years to m anage minor childhood illness and confidently navigate health services Project Team Members: Professor James Faulkner – University of Winchester, Dr Margaret Husted – University of Winchester, Dr Simon Fraser– University of Southampton, Dr Sanjay Patel – University Hospital Southampton NHS Foundation Trust Organisations Involved: University of Southampton, University of Winchester, University Hospital Southampton NHS Foundation Trust Brief summary of project: This research project aims to make community- based intervention recommendations to increase the health literacy of parents/ caregivers of children aged 0 to 4 years. This project will use a systematic review and sequential descriptive mixed method designs to meet the following research aims: • Research Aim 1: establish the effectiveness of community-based health literacy interventions aimed at parents • Research Aim 2: generate evidence of the validity of the Parent Health Literacy Questionnaire (pHLQ) • Research Aim 3: profile the health literacy of parents living in areas of high deprivation • Research Aim 4: identify interventions which could meet the health literacy needs of parents living in areas of high deprivation Patient and public involvement will be sought throughout this research project. Listen to her latest Podcast - Finding the Power in Empowerment - Episode One - Long Term Conditions- Sam and Lynn are joined by guests Holly and Mick. Project title : The PD Life Study – Exploring the treatment burden and capacity of people with Parkinson’s and their caregivers Brief summary of project: Treatment burden is the effort of looking after your health and its impact on you. High treatment burden can lead to poor quality of life and difficulties adhering to treatments. Treatment burden is balanced by capacity, which is the ability to manage treatment burden. This study will explore the experiences of treatment burden and capacity in people with Parkinson’s (PwP) and their caregivers. We will initially conduct interviews with PwP and caregivers in Hampshire to explore their views and experiences of the factors that influence treatment burden and capacity. This will be explored further in a national survey for PwP and caregivers with support from Parkinson’s UK. We will then form focus groups with key stakeholders to discuss the findings and prioritise recommendations for change. This study will enable us to develop recommendations of ways to reduce treatment burden or enhance capacity in PwP and their caregivers. Supervisors and organisations involved: Supervisor: Professor Helen Roberts, University of Southampton, University Hospital Southampton NHS Foundation Trust, Lead Ageing and Dementia Theme Supervisor: Dr Kinda Ibrahim, University of Southampton, Ageing and Dementia Theme Supervisor: Dr Simon Fraser, University of Southampton, Long-term Conditions Theme Project Title: A COMmunity Pharmacy-based intervention to identify people with undiagnosed Alcohol related liver Cirrhosis (The COMPAC Study) Supervisors: Primary – Julie Parkes, University of Southampton Secondary - Ryan Buchanan, University of Southampton Janisha Patel, University Hospital Southampton NHS Foundation Trust Kinda Ibrahim, University of Southampton Healthy Communities ARC theme Development of an integrated care model for patients and families living with long term neurological conditions Project Team Members: Professor Mari Carmen Portillo – University of Southampton, NIHR ARC Wessex lead for Long Term Conditions Theme, Dr Dorit Kunkel – University of Southampton, Research Design Service South Central, Professor Christopher Kipps – University Hospital Southampton NHS Foundation Trust, Professor Nick Goodwin – Central Coast Research Institute, The University of Newcastle, Australia Organisations Involved: University Hospital Southampton NHS Foundation Trust, Hampshire Hospitals NHS Foundation Trusts, University of Southampton, Southampton Academy of Research, Wessex Academic Health Science Network, Parkinson’s UK, Huntington’s Disease Association, MS Society Background: People living with long term neurological conditions have complex needs, which are not being fully met at present. This reduces their quality of life and increases costs to society. According to a survey in 2019, 90% of patients had not been offered a care plan. Problems with services not matching people’s needs have been identified, particularly in mental health, finance, and social care. These patients have the lowest health-related quality of life of any long term condition, according to NHS England. To address the needs of patients, the World Health Organization advises better coordination between different care services - This is called “integrated care”. Integrated care has shown benefits in other conditions but there is a lack ofevidence in long term neurological conditions. It is not clear what integrated care means, and how it can be delivered for those with long term neurological conditions. This study will focus on the needs and preferences of people living with Parkinson’s disease, Huntington’s disease, and Multiple Sclerosis, by: 1. Reviewing the evidence on how integrated care is provided internationally 2. Undertaking a UK wide survey to identify exemplar systems of integrated care followed by in-depth interviews to explore how care is currently delivered and experienced 3. Reaching consensus between different stakeholders on a model of integrated care and core outcomes for people living with these conditions This research project will explore the similarities and differences across long term neurological conditions and strategies for implementation of an integrated care model in practice. This project will characterise current care delivery and the experience of service users, showing the gaps in care and the changes needed in the system to meet the needs of people living with long term neurological conditions. It will inform the implementation and evaluation of the care model at post-doctoral level. This will result in a cost-effectiveness evaluation of the model and impact on service users’ outcomes. The anticipated long term impact of this study is that better system integration will result in improved outcomes for service users at no or reduced costs for health and social care systems. This knowledge is potentially transferable to other rare and prevalent long term neurological conditions – the biggest cause of disability worldwide. Read Sandra's blog Working under pressure – The UK community nursing workforce Project Team Members: Professor Jane Ball – University of Southampton, Dr Joanne Turnbull – University of Southampton, Dr Sarah Williams – Solent NHS Trust Professor Jill Maben – University of Surrey Organisations Involved: University of Southampton, Solent NHS Trust, University of Surrey. Background: Community nurses are an essential part of the nursing workforce in the UK. Providing care in peoples’ homes, community nurses play a vital role managing long term conditions, end of life care, acute management in a home setting and preventing avoidable hospital admission. UK healthcare policy continues to recognise the key role of community provision by setting ambitions to increase community-based care. This community focus is also reflected within research nationally, with clear strategic ambition to increase community-based research. Despite their importance, community nursing numbers are declining. There is a distinct lack of community nursing workforce research and therefore little empirical understanding of community nursing workforce outcomes such as staffing levels, retention, and burnout. Pressure is a term that is frequently used in nursing discourse and policy to describe nursing workforce contexts, but there is no recognised definition. This project will seek to understand and define pressure in a community nursing context and explore the viability of pressure as a community nursing workforce outcome. We hope that this project will provide understanding on current workforce outcomes in UK community nursing, provide a theoretical and empirical understanding of ‘pressure’ in UK community nursing contexts and begin to explore the use of pressure as a potential outcome measure for the UK community nursing workforce. Caring for the Sexual Health of Cancer Survivors and their Partners Project Team Members : Mrs Suzanne Sheppard – Bournemouth University, Dr Sally Lee – Bournemouth University Dr Zoe Sheppard – Dorset County Hospital NHS Foundation Trust, Ms Tracy Glen – Dorset County Hospital NHS Foundation Trust Organisation Involved: Dorset County Hospital NHS Foundation Trust. Background: Sexual difficulties are reported to be one of the most frequent, distressing, and persistent consequences of cancer and its treatment. However, despite the availability of both numerous interventions to treat sexual difficulties and models to help healthcare professionals communicate about sexuality, many patients continue to report that they do not receive supportive care from the hospital cancer team for these issues. Furthermore, if sexual concerns are discussed then the focus is often only on physical concerns. This mixed methods project is aiming to further illuminate the barriers to and facilitators for care for the sexual health of cancer survivors and their intimate partners. The initial quantitative phase will be a national, online survey of cancer survivors and their intimate partners. This survey will provide broad information about experiences of care and will explore perceptions of potential barriers and facilitators. The subsequent qualitative phase will take place at Dorset County Hospital NHS Foundation Trust and will involve semi-structured interviews exploring the lived experiences of the receipt and provision of care for sexual health in an oncology setting. At the end of the project, we will have a deeper understanding of the barriers to and facilitators for care for sexual health in oncology. It is anticipated that the use of the critical realist paradigm will help to achieve this deepening of understanding. These findings may be used to create an intervention to help improve the provision and receipt of care for sexual health for cancer survivors and their intimate partners. Sexual wellbeing is thought to be an important component of overall wellbeing and it is hoped that the findings may lead to improvements in both areas. Project title: Nudging; a theoretical concept for a very practical approach to pelvic floor muscle training Project team members: Professor Carol Clark- Bournemouth University. Dr Carly Stewart- Bournemouth University. Mrs Sally Sheppard- Dorset Lead Pelvic Health Physiotherapist Organisation involved: University Hospitals Dorset Background: The aim of this study is to explore whether nudge theory, in the form of digital nudges, influence pelvic floor muscle training adherence in perinatal women. The mixed methods study is divided into three phases. The first phase involves a systematic literature review around the effect of pelvic floor muscle training mobile apps on pelvic floor muscle training adherence in women. Phase two of the study involves qualitative research around discourse and behavioural communication behind a social media campaign. Patient and public involvement work alongside phases one and two will be used to inform the co-design of digital pelvic floor muscle training nudges. The third phase of the study will a feasibility study integrating digital nudges in new NHS perinatal pathways. Study findings will determine whether a randomised control trial is feasible for post-doctoral research. Project title: Exploring the relationship between health system responsiveness and the implementation of person centred integrated care for older people with frailty Post Doctoral Dr Kate Glyn-Owen - Healthy Communities Theme Dr Leire Ambrosio - Long Term Conditions theme Dr Miriam Avery - Workforce & Health Systems Dr Jo Hope Project: Early detection of chronic liver disease in community settings More details here Understanding, addressing, and meeting the complex needs of people living with long term physical and mental health conditions: a qualitative study Rea d more The career aspirations of nurses working in the research delivery workforce: a cross-sectional survey Read more

< Back Marcus Harris Account Director This is placeholder text. To change this content, double-click on the element and click Change Content. Want to view and manage all your collections? Click on the Content Manager button in the Add panel on the left. Here, you can make changes to your content, add new fields, create dynamic pages and more. Your collection is already set up for you with fields and content. Add your own content or import it from a CSV file. Add fields for any type of content you want to display, such as rich text, images, and videos. Be sure to click Sync after making changes in a collection, so visitors can see your newest content on your live site. info@mysite.com 123-456-7890

COMPLETED ADOPTED PROJECT: Neuro LTC: Assessing Baseline Factors, Critical Events and Fatigue in Long Term Neurological Conditions Principal Investigator: Dr Chris Kipps, Neurologist and Hon Senior Lecturer, University of Southampton Team Members: Dr Helen Roberts Veena Agarwal Dr John Spreadbury Dr Emma Stack Dr Sarah Fearn Prof. Ann Ashburn Start Date: 23/08/17 End Date: 31/12/22 Project Funder: University Hospital Southampton NHS Foundation Trust Lay Summary Many neurological conditions have a long-term impact on quality of life with varying requirements for intervention and care over time. This has the potential to create a mismatch between the needs of patients at particular stages in their illness, and the skill levels of clinicians and available resources required to assist them appropriately. This project aims to identify the factors that influence everyday care requirements (baseline factors) and to identify the critical events that have the potential to lead to an increase in care requirements. In many neurological conditions, there may also be ‘hidden’, less evident or more subjectively perceived factors that influence care requirements, of which fatigue may be amongst the most common. Thus, this project also includes research into the prevalence and effects of fatigue in neurological conditions. By identifying and better understanding baseline factors, critical events and the features of fatigue in long term neurological conditions, this project will help to enable future research to stratify long-term neurological conditions by the degree of complexity and individual burden and match service users more effectively to appropriate clinical and social care resources. Method The research will focus on the following five neurological conditions: epilepsy, Huntington's disease, motor neurone disease, multiple sclerosis, and Parkinson's disease. The study will involve the use of mixed methods. We will use surveys and focus groups with service users (patients and caregivers) to identify the factors that help to maintain an individual’s optimal level of living with the neurological condition (baseline factors), the critical events that can cause a change in care requirements in each of the five neurological conditions, and the impact of fatigue. What did we learn? 1. What factors affect the care that people living with a neurological condition require? We found that mobility was the most important factor for assessing care needs from the patient perspective. This was followed by dexterity, eating and drinking, speech and communication, cognitive impairment and mental health. This order of relative importance was found to be constant by age, disease progression, gender, living alone, or presence of co-morbidities. However, younger patients, more progressed patients, females, those living alone and those with co-morbidities tended to produce higher average scores of importance, meaning they felt their symptoms in these areas had a higher impact on their care needs. We asked participants what helped them to manage their condition and live well. The most important factors were: Social support, exercise, lifestyle factors and supportive equipment. Less recognised factors such as access to healthcare professionals, the patient’s mentality and diet were also noted. We found that recently diagnosed patients cited ‘employment’ and ‘feeling informed’ more frequently, whilst less recently diagnosed patients mentioned ‘having a carer’ and ‘getting out of the house’ more frequently. 2. What events lead to an unplanned GP or hospital visit for people living with a neurological condition? We found that there are specific events that are likely to lead to an unplanned GP or hospital visit for people with neurological conditions. In addition to well-recognised causes of crisis such as falls, trigger events less widely associated with crisis were identified, including difficulties with activities of daily living and carer absence. The less-recognised trigger events tended to be managed more frequently in the community. Many of these community-based crises had a greater impact on care needs than the better-known causes of crisis that more frequently required hospital care. Patient and carer responses indicated a good general knowledge of potential crisis triggers. Patients were more aware of mental health issues, and carers were more aware of cognitive impairment and issues with medications. 3. What is the frequency and impact of fatigue for people living with neurological conditions? We found that the prevalence of clinically significant fatigue across five neurological conditions (Parkinson’s, MS, epilepsy, MND and Huntington’s disease) was 51%. The highest prevalence of fatigue was amongst people with MS and MND, and lowest was amongst people with epilepsy. More than a third of participants reported that fatigue frequently impacted their social life and ability to concentrate. Factors associated with clinically significant fatigue were male gender, age, frequency of fatigue greater than twice a week and fatigue often having a detrimental effect on social life. What difference can this new knowledge make? Understanding the factors that affect the care needs of people living with neurological conditions can help to ensure care resources are targeted at those most at risk of high care needs. Understanding that younger patients, more progressed patients, females, those living alone and those with co-morbidities generally considered their symptoms to have a higher impact on their care needs, can allow us to target these patients with relevant support and interventions. Identifying the most important factors for people with neurological conditions to self-manage their conditions and live well can enable us to share this information more widely and promote self-management tools and techniques amongst this population. By increasing understanding of events that lead to a GP or hospital visit, we can better inform strategies to prevent them. Similarly, by identifying under-recognised crisis triggers we can build a better understanding of ‘risk factors’ for an unplanned GP visit or hospital admission. Identifying that Patients were more aware of mental health issues, and carers were more aware of cognitive impairment and issues with medications means that we can ensure healthcare professionals are asking the right questions to the right person. We also noted some differences in how patients and clinicians describe the events that precede a GP or hospital visit. This can help to ensure healthcare professionals are using the right language when assessing the risk of individual patients. By increasing understanding of events that lead to a GP or hospital visit, we can better inform strategies to prevent them. Similarly, by identifying under-recognised crisis triggers we can build a better understanding of ‘risk factors’ for an unplanned GP visit or hospital admission. Identifying that patients were more aware of mental health issues, and carers were more aware of cognitive impairment and issues with medications means that we can ensure healthcare professionals are asking the right questions to the right person. We also noted some differences in how patients and clinicians describe the events that precede a GP or hospital visit. This can help to ensure healthcare professionals are using the right language when assessing the risk of individual patients. Why is this important? The number of people with a neurological condition is rising, with around 17 million cases in the UK. Approximately 4% of NHS funding goes to neurology care. People with a neurological condition are more at risk of unplanned hospital visits and admissions than many other groups. Identifying factors that promote self-management and well-being could improve patient diagnosis and quality of life, reducing care requirements from the NHS. Reducing unplanned GP and hospital visits could improve patient quality of life and reduce resources spent by the NHS. Identifying the frequency and impact of fatigue and ways to manage it could improve patient and reduce resources spent by the NHS. What Next? We have already taken some of the findings from this study to: -Publish academic publications -Present at medical conferences -Present to groups of people with neurological conditions -Present to national support organisations -Create an impact inventory for neurological pathways -Create questionnaires that aim to identify those most at risk of an unplanned GP or hospital visit (implemented through My Medical Record) We are continuing to analyse the data and disseminate findings to a wide audience. Publications The Causes and Impact of Crisis for People with Parkinson’s Disease: A Patient and Carer Perspective - Sarah Fearn, Sandra Bartolomeu Pires, Veena Agarwal, Helen C. Roberts, John Spreadbury, Christopher Kipps, 2021

COMPLETED: Neuro Online (Formerly From Clinic to E-Clinic): Evaluating the Implementation of the My Medical Record Platform in Young-Onset Dementia and Huntington’s Disease. Principal Investigator: Dr Chris Kipps Team members : Dr Chris Kipps, Neurologist and Hon Senior Lecturer, University of Southampton Dr Sarah Fearn, Senior Research Fellow, University of Southampton Dr John Spreadbury, Senior Research Fellow, University of Southampton Dr Alex Young, Senior Research Assistant, University of Southampton Dr Rachel Chappell, Project Manager Start : 1 June 2020 Ends : 31 May 2027 Project Partners : University of Southampton, University Hospital Southampton NHS Foundation Trust, The Health Foundation Lay summary: Digital health platforms can improve care and support self-management, but only if they actually work and if people make use of them. The Neuro Online study aims to better understand how the online platform My Medical Record can be used to support and improve care for people with long-term neurological conditions. Aims: We want to better understand the factors that influence the uptake, use, and effectiveness of an online care and self-management platform for patients with long-term neurological conditions, their carers and the healthcare professionals who care for them. Design and Methods: The Neuro Online study will use surveys and My Medical Record system data to better understand how and why people use the Neuro section of My Medical Record. We will recruit 2000 patients, carers and healthcare professionals to participate for up to 7 years. During this time we will track how they use the online platform and their thoughts on it. We will also ask patients and carers about their well-being and their patient activation measure so that we can compare their experiences with the platform to this information. Participants will have the opportunity to participate in a number of additional sub-studies, which focus on particular issues such as quality of life, what individual characteristics are associated with use (or not) of the platform, and whether certain functions of the platform such as care planning are useful. A small number of patients will be asked to participate in face-to-face interviews to assess their use of the platform. NHS staff will be surveyed to see if platform use changes how they deliver care. As online platforms are increasingly being developed for the NHS, we hope the study will help understand how to make them relevant, useful and appealing to use. The findings should help to optimise the design and usefulness of these online tools, with the aim of supporting and improving the delivery of care. What did we learn? What Next? • Expand recruitment •Look at other characteristics e.g. years since diagnosis; education • Link to: literature review qualitative work work on digital healthcare in general (Neuro Digital) outcome measures optimisation of outpatient care • Feedback to stakeholders Related publication: A Comprehensive Literature Search of Digital Health Technology Use in Neurological Conditions: Review of Digital Tools to Promote Self-management and Support

COMPLETED ADOPTED PROJECT: ADAPT: The cross-sector implementation of NICE-recommended CBT-based interventions for young people in care: Framework Chief Investigator: Dr Rachel Hiller– University of Southampton Project Team Members: Dr Gretchen Bjornstad– University of Exeter, Dr Tim Clarke – Norfolk & Waveney Children and Young People Care Group, Dr Kristian Hudson– Improvement Academy Bradford Teaching Hospital NHS Foundation Trust, Professor John Macleod– University of Bristol, Dr Ruth McGovern– Newcastle University, Dr Hugh McLeod– University of Bristol, Professor Richard Meiser-Stedman– University of East Anglia, Dr Sara Morgan– University of Southampton, Dr Beverley Slater– Bradford Institute of Health Research, Professor Paul Stallard– University of Bath, ProfessorJohn Wright– Bradford Institute of Health Research, Dr Patrick Smith– King’s College London. Organisations Involved: Swindon Borough Council, Bath and North East Somerset (BaNES) Children’s Services, Thinking Allowed specialist-service, Bristol, Newcastle City Council Children’s Social Care, Child and Adolescent Mental Health Services (CAMHS) (East) Background: Young people in care (care-experienced young people; CEYP) have substantially higher rates of mental health difficulties compared to their peers. Their unaddressed mental health needs have been identified as a key driver of a range of poor outcomes that categorise this group. For example, CEYP they are five times more likely than peers to be excluded from school, comprise 50% of the young male prison population, and 25% of the homeless population. Such outcomes are not inevitable. Yet services are often struggling to effectively address the mental health needs of this group, and thus prevent some of these wide-ranging consequences. To begin to address this complex issue, we are proposing a pilot implementation project, working with CAMHS, social care and third- sector mental health services across four target ARCs. Our pilot project aims to address this via overlapping stages that form the essential framework for a full-scale implementation trial. These are: (1) A scoping review and consultation with CEYP, carers, and services to develop an initial implementation framework, based on the consolidated framework for implementation research (CFIR) (2) The development of our implementation resources, including training materials What did we find out? We found that young adults aged 18-25 did not engage with the RADAR/ADAPT programme, and may not engage with perpetrator services, if they do not have motivation to do so. The implications are that this poses a risk to victims, particularly if perpetrators have high risk behaviours. To address this, more work should be done to disrupt high risk individuals and refer them on to workshops that require less time commitment; in order to initiate self-awareness around their behaviors and their impact on others. Given that children were a strong motivation for completing a programme, it seemed almost paradoxical that there were no specialist services made available for children within the DAPP model. Although there is compelling evidence to suggest that men changed their behaviours following the programme, police reoffending data suggests that, for a minority of individuals, more work is required to fully embed positive behaviours. A mentoring service may support such aims. To further support evidence on behavioural change, long term outcomes related to victim harm should be measured; for example, through a short questionnaire filled out by current or former partners. The RADAR/ ADAPT programme is specific to the domestic abuse experienced between intimate partners within heterosexual relationships. The implications are that a number of individuals may not find the programmes appropriate to their context. Therefore pilot programmes should be developed to tackle different relationship dynamics and types of abuse, including lesbian gay bisexual transgender queer (LGBTQ) relationships, and Elder Abuse. Finally, to full achieve a community coordinated response, and make the most of the resources available, pathways of referrals and a mutual understanding of roles and responsibilities should be clearly set out, to cover both statutory and non-statutory organisations. What did we do with this knowlege? •The findings from the research were communicated with the commissioners of future services in Domestic Abuse in Hampshire. •The next commissioned service considered the findings of the research in the tender. •For example, given the risk of non-engagement of younger adults, a specific service for 18-24 year olds, was set up that working on the specific needs of this population group. •The findings added to the limited knowledge around voluntary community perpetrator programmes. •It was published in the Open Access journal PloS ONE https://doi.org/10.1371/journal.pone.0218408 •Dr Sara Morgan was interviewed alongside Tracy Rutherford (Hampton Trust) on the Patrick Sisson show (BBC Radio Solent) Where next? •The work on ADAPT has led to further research in this area through existing partnerships, including a national evaluation of CARA •We have continued relationships with police partners who were interested in further evaluation work, which led to co-funding of other projects including Operation Foundation and MASP •Personally, Chief Investigator is interested in the findings around younger perpetrators, and how to engage them better in the health and social care system, and improve their life-chances. •Where many perpetrators on ADAPT have experienced domestic abuse as children, and they themselves have children, I’m interested in pursuing work around preventing the intergenerational transmission of domestic abuse.

COMPLETED: Neuro Digital: From Attitudes to Strategies Principal Investigator: Professor Chris Kipps Team members: Dr Sarah Fearn, Dr John Spreadbury, Dr Rachel Chappell, Dr Corine Driessens Project Partners: University Hospital Southampton NHS Foundation Trust, University of Southampton Starts: 01 October 2021 Ends: 30 September 2023 Background The COVID-19 pandemic has changed the way neurological care is delivered to involve greater use of digital technology such as videocalls, smartphone apps or online platforms. University Hospital Southampton (UHS) has been developing its own electronic personal health record and self-management platform called My Medical Record. This online care platform offers patients more control over their healthcare by allowing them to: access their clinical letters and appointments in one place message their clinical teams for advice read relevant information on their condition monitor and share outcomes. Data from the platform, however, indicates differences in uptake and use amongst different groups of patients and healthcare professionals. Existing research also tell us that there are still important issues to understand around the uptake and use of digital technology in neurological care and long-term conditions more generally. Aims and Methodology The main aim of the research is to understand how to optimise the use of digital health technology in neurological conditions ( multiple sclerosis, Parkinson’s disease or Atypical Parkinsonian Syndrome (APS), headache, epilepsy, motor neurone disease or other neuromuscular disorder, Huntington’s disease, atypical or early onset dementia ). This will include how to optimise the use of My Medical Record for patients at UHS. The research will involve three interrelated pieces of work or ‘work packages’: Work Package 1 will use interviews and focus groups with neurological patients, carers, and healthcare professionals to investigate attitudes toward digital health technology and My Medical Record. Work Package 2 will use surveys with neurological patients to investigate relationships between personal and clinical characteristics and how people use digital health and My Medical Record. Work Package 3 will use the findings from Work Package 1 and 2 to produce some strategies to support people with neurological conditions to use digital health and My Medical Record. The strategies will be produced together with patient, carer, and healthcare professional groups in co-production workshops. Outcomes The NHS has highlighted the greater use of digital health technology as a way to improve the delivery of care over the next 10 years. The findings from the research will help us to better understand how to promote, optimise and support the use of digital health for people with neurological conditions, including the use of My Medical Record. Taking Part If you would like more information about the study or are interested in taking part, please contact Dr Sarah Fearn via email at S.Fearn@soton.ac.uk or Dr John Spreadbury on 07876818404 or jhs101@soton.ac.uk . What did we find out? With regards to personal characteristics affecting use: We found that older age, lower education, lower income, lower literacy and lower patient activation* were all associated with lower digital health technology uptake and use and more negative views. * Patient activation is a person's level of knowledge, skills and confidence to manage their condition(s) We found that gender and health status were not associated with uptake, use* or views. * Exception of health status and direct contact with healthcare team when participant has a specific issue Whilst we found that symptoms associated with having a neurological condition impacted the use of digital healthcare, we found that people with a neurological condition had access to digital healthcare (e.g. the tech / internet connection etc) comparable to the general population. We also held three co-production workshops to identify strategies that could support or promote the use of digital health technology amongst people with neurological condition. • These were the suggested strategies: What difference can this new knowledge make? Understanding the attitudes towards, and use of, digital health technology for people living with neurological conditions, their carers and their HCPs allows us to identify areas where more support might help promote and improve use. Identifying personal and health characteristics associated with more negative views and / or lower rates of use can help us to identify those more likely to need, or benefit from, additional support. Co-designing strategies to help support and promote the use of digital health technology for people living with neurological conditions, their carers and their HCPs, allows us to create support mechanisms that have been co-developed with the users themselves. Why is this important? The number of people with a neurological condition is rising, with around 17 million cases in the UK. Approximately 4% of NHS funding goes to neurology care. The use of digital health technology offers an opportunity The NHS Long Term Plan highlights the use of digital mechanisms as key enablers to improve NHS care delivery over the next 10 years. The use of digital health technology has the potential to help reduce variation or inequality in care, make care more integrated or joined up, identify people at higher risk of poorer outcomes, and promote self-management. It can also support clinicians to be more efficient, freeing up time for the sickest patients. Identifying factors that promote self-management and well-being could improve patient diagnosis and quality of life, reducing care requirements from the NHS. Reducing unplanned GP and hospital visits could improve patient quality of life and reduce resources spent by the NHS. Identifying the frequency and impact of fatigue and ways to manage it could improve patient and reduce resources spent by the NHS. Our findings can help to improve support to people with neurological conditions to use digital health technology. It can do this by: Understanding the benefits and challenges of use Identifying those most likely to need or benefit from additional support Co-developing implementable strategies to support or promote use What Next? We will be using the findings from this study to: -Publish academic publications -Present at medical conferences -Present to groups of people with neurological conditions -Present to national support organisations -Present to ICB (digital transformation work programme); UHS (IT); Neurological Alliance -Inform the Optimising Outpatients project, which aims to create recommendations for the use of remote care in neurology outpatient services. We are continuing to analyse the data and disseminate findings to a wide audience.

COMPLETED: Developing training for person-centred care: adapting the Chat & Plan for use in domiciliary care Chief Investigator: Dr Teresa Corbett, Visiting Research Fellow, School of Health Sciences , University of Southampton and Senior Lecturer in Psychology, Solent University. Co-Investigators: Professor Jackie Bridges, Professor of Older People's Care, School of Health Sciences, University of Southampton Dr Nicola Andrews, Research Fellow - NIHR ARC Wessex , School of Health Sciences, University of Southampton Cindy Brooks, Research Fellow - NIHR ARC Wessex , School of Health Sciences, University of Southampton Dr Pippa Collins, Advanced Clinical Practitioner, Post Doc Research Fellow – NIHR ARC Wessex, School of Health Sciences, University of Southampton Collaborating organisations: Hampshire County Council – Maria Hayward, Learning & Development Service Manager and Implementation Champion Bournemouth, Christchurch and Poole Council – Alison Pearman, Service Improvement Manager Wessex AHSN – Cheryl Davies, Senior Programme Manager (Healthy Ageing) Skills for Care – Debbie Boys, Locality Manager – Hampshire, Southampton, Portsmouth and Isle of Wight Purple Lilac Healthcare - Violet Chatindo, Registered Manager Right at home – Andrew Davis, Registered Manager Partners in Care – Kate Blake, Manager Start date: 1/6/23 End date: 1/9/24 Aim of the research The aim of this research is to adapt a communication tool for use by social care workers and to find out what type of information we should include in a training package for social care workers providing domiciliary care (e.g., practical help and support in the community) to support its use. This study will help us to make a training course that we can try out with social care workers in future research. Background to the research We made a tool to help healthcare staff to talk to older adults about their needs. This tool has 8 steps that should be followed in a discussion with people about their needs and personal goals. However, the tool might need to be changed if we want to use it in domiciliary or other social care settings instead of healthcare (e.g., the NHS) settings. In this research, we want to see if we need to change the tool so that it can be used by social care workers. We also want to find out about how we might be able to train social care workers to improve how they talk to older adults about their needs. Design and methods used We will study existing courses, workshops and training so that we can find out more about how we should plan our training. We will also interview social care workers to find out more about what they do in their role. We will ask them to tell us what they think of the tool, and what changes we might need to make to it. Up to 15 social care workers will take part. We will make a draft of what will be included in the training. Experts will discuss the training and we will make changes based on what they say. We will interview some more social care workers to find out what they like or do not like about the training plan we have made. Patient, public and community involvement Members of the public have been part of the study so far in many ways. They have helped us to make the tool that we will ask social care workers about. We will also work with experts in social care who have agreed to help us to in a number of ways. These include: · Looking over content and letting us know what they think. · Coming to project meetings. · Helping to plan the study. · Looking over study information that we will send to participants. · Helping us to make sense of the research findings. Dissemination We will share our findings at conferences and at events with audiences who are interested in our study. We will also write about our findings for academic and public audiences via Communications channels (e.g. relevant websites, social media, newsletters). We will also share findings with those working in social care, e.g., via domiciliary care forums (each local authority has one) and with Learning and development teams in local authorities. What did we find out? An adapted version of the CHAT&PLAN is viewed as feasible to use in homecare settings. We needed to change some of the language to make it more relevant to homecare settings and improve clarity. There is an appetite and need for co-designed, evidence-based, person-centred care training in homecare settings. Much of the existing training on this topic is not specific to homecare workers and may not always apply to their role. CHAT&PLAN provides an overview of skills that should be used flexibly, depending on the needs and preferences of the service user. The training will emphasise that it may not work well for all service users, and further communication skills training is required alongside this course. We identified key factors we would need to consider in the development of a training package: 1.Teaching style and methods should be practical to support skills development. Training should involve learning from each other and reflection. 2.The training must be viewed as relevant to the homecare workers and be pitched at a level that is clear and easy to understand. 3.Buy-in from managers, organisations and service users is required for homecare workers to attend sessions, and then apply skills in practice. What did we do with this new knowledge? •Study summary was shared with supporting organisations and participants •Systematic review paper has been submitted to PLOS One Where next? We did not have time in this study to test out the training with homecare workers. This is important as we want to know how the training works in practice. We will need to test the package to see what homecare workers and managers think of the entire set of materials and methods used in the training. We will then apply for funding to see whether the training is acceptable and feasible in practice and improves the quality of person-centred care provided by homecare workers.

ARC qualitative network Aim The aim of the group is to encourage debate and discussion about the place of qualitative research in health research, its core concepts and methods in a dynamic and supportive atmosphere. The group is multidisciplinary with over 140 participants drawn mainly from di fferent faculties (Health Science, Medicine, Psychology, Sociology) and universities across Wessex, and some national and international participants. The group aims to be helpful and facilitate the use and development of qualitative research in health, illness and care. Participants The group is primarily concerned with providing a peer support network and the development of knowledge and skills of early and mid-career researchers who are conducting or interested in qualitative research. Frequency of meetings The group meets every 2-3 months to discuss a specific topic related to qualitative research, with selection of topic normally driven by the members and their interests and needs. Webinar 1 May 2020 - Qualitative Longitu dinal Research (QLR) - hosted by Dr Eloise Radcliffe, from the MacMillan Survivorship Research Group & Dr Meredith Tavener, University of Newcastle, Australia Webinar 8 July 2020 - Phone and online qualitative interviews - hosted by Dr Sofia Strommer and Dr Kinda Ibrahim Webinar 2 October 2020 - Teaching and Qualitative Research Webinar 11 February 2021 - Realist synthesis - Webinar by Dr Ivaylo Vassilev, Dr Alejandra Recio Saucedo & Dr Ksenia Kurbatskaya as part of ARC Qualitative Network Webinar 12 February 2021 - Realist Synthesis Exercise for Context, Mechanism and Outcome (CMO) configuration - with Dr Ivaylo Vassilev, Dr Alejandra Recio Saucedo & Dr Ksenia Kurbatskaya as part of the ARC Qualitative Research Network Webinar 19 March 2021 - Innovative ideas for Patient and Public Involvement (PPI) in qualitative research - March 19 2021 - Presented by Dr Caroline Barker (ARC PPI lead) and Carmel McGrath - Chaired by Dr Kinda Ibrahim (download copy of presentation) Webinar Friday 18 June, 2021 11.00am-12.30pm - How to conduct a systematic review and synthesis of qualitative studies - Speakers and researchers, Dr Teresa Corbett and Dr Kate Lippiett, who will share their recent experiences in conducting systematic reviews of qualitative studies, top tips and issues to avoid. (Download copy of presentation) Webinar December 8, 2021 - 1.00pm-2.30pm - Dr Kat Bradbury explain the value of using Qualitative Research in designing interventions - A Person Based Approach (Download a copy of presentation) Webinar March 29, 2022 - 1.00pm-2.00pm - Dr Sarah Fearn and Mrs Veena Agarwal Content analysis of interviews and surveys: Methodology and application (Download a copy of the presentation) Webinar April 28, 2022 - 11.00am-12.30pm -Dr Amanda Blatch-Jones and Dr Katie Meadmore share their experience of using netnography to explore funding committee practice allocation of research funding. (Download a copy of the presentation) Webinar June 9, 2022 - Professor Carl May presents “qualitative studies of innovations in treatment, organisations, and delivery of healthcare services: how the normalisation process theory coding manual can help?" Webinar October 6, 2022 -Dr Kate Lyle and Dr Susie Weller : Exploring the complexity of patient journeys: analysing, representing and communicating experiences through visual methods Webinar March 29, 2023 - download slides : WATCH: Video Reflexive Ethnography as a research and healthcare improvement tool – methodology and application. Webinar September 15, 2023: Watch:Decolonising qualitative research: Employing a critical cultural safety lens to address inequity and social justice Dr Elissa Elvidge Slides Webinar December 1, 2023: Watch: ARC Qualitative Research Network: Understanding Narratives Through Timeline Drawings. Webinar March 12, 2024: Watch: ARC Qualitative Network: Co-Production Webinar May 15, 2024: Watch: ARC Qualitative Network: Photo Elicitation Webinar September 2024: Watch: ARC Qualitative Network: Think Aloud Slides set 1 and Slide set 2 Webinar December 5 2024 - Using I-Poems for Deeper Insights in Qualitative Data Analysis Slides Using i-poems for deeper insights in qualitative data analysis - Lisa Ballard UoS Using I-Poems to extract the essence of a participant's experience - Chloe Langford Uos Resources The group has developed a “MUST READ LIST” for qualitative researchers that include articles and books that discuss different areas including: challenges of conducting qualitative research; ensuring quality in qualitative research; the place of different methods of data collection; teaching qua litative research. We built this dedicated resource to help and advise people and we are constantly updating the list to include any further useful resources. If you would like to update the Must Read list email Jamie.stevenson@soton.ac.uk The group has also started building a resource of people with their expertise so members can identify at a glance the most suitable person(s) within the group to help, advise, and support on a particular topic. If you would like to add your details, please click here Group Convenor If you would like to know more about the group or interested in joining in please email Dr Kinda Ibrahim K.ibrahim@soton.ac.uk

Home > About us Implementation The ARC Wessex implementation strategy focuses on addressing the gap between project that validate an innovation at a signle and/or single group of sites and adoption of that innovation by the wider health and social care system. Sustainable system implementation is not a linear pipeline process, but a dynamic interaction between health and care research, commissioning and delivery at multiple points in the innovation cycle. Looking for the Implementation toolkit? What we do What we do The ARC Wessex Implementation Team has developed a workflow, including an implementation checklist, that is applied to the entire ARC Wessex portfolio. Our workflow includes initial implementation advice to help researchers complete the proposal form, reviewing the ARC proposals, and providing follow-up support to successful projects (advice only or in-depth). For in-depth support, we co-develop detailed implementation plans with the project leads. All projects have access to implementation resources. As well, we actively contribute to the development of materials for the ARC Wessex PhD fellowship programme, including teaching sessions. Collaborating with Wessex AHSN focuses on bringing AHSN criteria or staff into the ARC funding process, making initial contacts in the NHS for ARC portfolio projects (when appropriate), continuing active working on specific projects and contributing to upcoming proposals. The Implementation Team also offers support to each ARC-funded project implementation champion (IC). ICs are not necessarily researchers, are located within, or can readily connect with, the relevant setting(s) where the project findings will have relevance. The IC promotes knowledge of the project, facilitate conversations about its implications and promotes translation. See details of the Wessex NHS Insights Prioritisation Programme Project (NIPP) in conjunction with the Ageing and Dementia theme and AHSN Wessex our team Our team Philippa Darnton Interim Implementation Lead ARC Wessex Profile Dr Michelle Myall Senior Research and Implementation Fellow Profile

Sorry This page is missing In March 2023 ARC Wessex moved to a new site Some of our old page links may not work Back to Homepage

Alignment with Health and Social Care Priorities Project Outputs Buy-in and Engagement Fit with Health and Social Care Systems Alignment with Health and Social Care Priorities Outcomes and Impact Adoption and Spread Checklist, webinar and resources Quick links: Project Outputs This domain helps you consider how implementation of your project output(s) fit with the changing needs of the health and social care systems and local, regional and national directives and policy. NHS Dorset Integrated Care System (ICS) Hampshire and Isle of Wight Integrated Care System (ICS) NHS Trusts Dorset County Hospital NHS Foundation Trust Dorset HealthCare University NHS Foundation Trust Hampshire Hospitals NHS Foundation Trust Isle of Wight NHS Trust Portsmouth Hospitals University NHS Trust University Hospitals Dorset NHS Foundation Trust Salisbury NHS Foundation Trust Solent NHS Trust Southern Health NHS Foundation Trust University Hospital Southampton NHS Foundation Trust Universities Bournemouth University University of Portsmouth University of Southampton University of Winchester Research partners Health Innovation Wessex (formerly Wessex Academic Health Sciences Network) What should I consider for my project? Adoption and Spread Project Outputs Buy-in and Engagement Fit with Health and Social Care Systems Alignment with Health and Social Care Priorities Outcomes and Impact Case study Staff Wellbeing (SWP) project “We knew that senior managers were keen to understand the wellbeing needs and priorities of staff, but we did not know how to address this. By consulting with colleagues from a partner organisation, we were able to understand how they approached this. They informed us that they had conducted an anonymous survey with staff to ascertain key needs and priorities for wellbeing. With their guidance we collaborated with a local research and evaluation partner who helped us design the questions for a survey administered within our organisation. In this way we could make sure any initiatives arising from the project were aligned to staff needs. When we conducted the survey, we realised one key factor impacting on staff wellbeing was influenced by a national policy initiative which had resulted in changes to working practices within our organisation. We reflected that we should have reviewed national policies more closely at an early stage, to ensure that our survey questions considered the potential impact of these. We have since adapted the survey to include questions relating to the impact of these policies. The survey findings have provided important insights into how national policies impacted on staff wellbeing at an organisational level as well as reinforcing the importance of wellbeing initiatives being aligned to local, regional and national priorities.” Take away tips Implementation is more likely to be successful when it aligns with the priorities of all relevant stakeholders Understanding how implementation may align at local, regional, and national levels is key